Vagal nerve stimulation


Vagal nerve stimulation is a treatment for epilepsy in which an electrode is implanted in the neck to deliver electrical impulses to the vagus nerve.


Vagal nerve stimulation is an alternative to medication or surgical removal of brain tissue in controlling epileptic seizures. The seizures of epilepsy are caused by uncontrolled electrical discharges spreading through the brain. Anti-seizure drugs interrupt this process by reducing the sensitivity of individual brain cells to stimulation. Brain surgery for epilepsy either removes the portion of the brain where seizures originate, or cuts nerve fibers to prevent the nerve impulses that occur during a seizure from spreading to other parts of the brain. Vagal nerve stimulation uses a different approach; it provides intermittent electrical stimulation to a nerve outside the brain—the vagus, or tenth cranial nerve, which influences certain patterns of brain activity.

The vagus nerve is a major connection between the brain and the rest of the body. It carries sensory information from the body to the brain, and motor commands from the brain to the body. The vagus is involved in complex control loops between these destinations; its precise pathways and mechanisms are still not fully understood. It is also not known how stimulation of the vagus nerve works to reduce seizure activity—it may stimulate inhibitory pathways that prevent the brain's electrical activity from getting out of control, interrupt some feedback loops that worsen seizures, or act in some other fashion.

Vagal nerve stimulation has been effective in reducing seizure frequency in patients whose seizures are not controlled by drugs, and who are either not candidates for other types of brain surgery or who have chosen not to undergo these procedures.


Epilepsy affects about 1% of people in the general worldwide population. Approximately 40% of patients do not respond well to medications, however, and so may be candidates for surgical treatment. Vagus nerve stimulation was first performed in the United States in 1988 and received final approval by the United States Food and Drug Administration (FDA) in July 1997. Approximately 10,000 people worldwide have had stimulators implanted as of 2003; about a fifth of these patients are children 12 years old and younger.


The vagal nerve stimulator has two parts: an electrode that wraps around the left vagus nerve in the neck; and a pulse generator, which is implanted under the skin below the collarbone. The two parts are connected by a wire. Stimulation is performed only on the left vagal nerve, as the right vagal nerve helps control the heartbeat.

Surgery to implant a VNS device takes about two hours. A neurosurgeon implants the electrode and generator while the patient is under general anesthesia. A vertical incision is made in the left side of the neck, and the helical electrode is attached to the nerve itself. A second incision is made on the left side of the chest below the collarbone, and the pulse generator (a disc about 2 in [5 cm] in diameter) is implanted under the skin. The connecting wire is threaded around the muscles and bones to join the electrode and generator. The generator makes a small bulge under the skin but is hidden by clothing after the operation.

Before the neurosurgeon closes the incisions, he or she tests the VNS device to make sure it is working, and programs it to deliver the lowest amount of stimulation. The device is usually timed to stimulate the vagus nerve for 30 seconds every five minutes.


A candidate for vagal nerve stimulation will have had many tests already to determine the focal point of seizure activity. Preoperative tests include neuroimaging as well as psychological tests to determine the patient's cognitive (thinking) strengths and weaknesses.

The patient must be fully informed about VNS—how it works, its advantages and disadvantages, what will happen during surgery—before the operation is scheduled. A video as well as written material about VNS is available to view and discuss with the doctor.


Implantation of the stimulator in an adult may be performed as either an outpatient or inpatient procedure. In the latter case, the patient will remain in the hospital overnight for monitoring of heart function and other vital signs . Children who are receiving a VNS are usually scheduled for an overnight stay. Pain medication is given as needed.

The stimulation parameters are adjustable, and the neurologist may require several visits to find the right settings. Settings are adjusted with a magnetic wand that delivers commands to the stimulator's computer chip. The patient may be taught how to use a magnet to temporarily increase stimulation, to prevent a seizure, or to abort it once it begins.

The VNS generator is powered by a battery that lasts several years. It is replaced during an outpatient procedure under local anesthesia.


The most common adverse effects from vagal nerve stimulation are a hoarse voice, cough, headache, and ear pain. These side effects can be reduced by adjusting the stimulation settings, and may subside on their own over time. Infection and device malfunction are possible though rare.

Patients who have had a VNS implanted must avoid strong magnets, which may affect the stimulator settings. Areas with warning signs posted regarding pacemakers should be avoided. The patient should consult with the neurologist and the neurosurgeon about other hazards.

Normal results

Approximately half of all patients who have received vagal nerve stimulation experience about a 50% reduction in seizures. Another 9% of patients obtain complete relief from seizures. Most patients who continue to take antiseizure medications can reduce their dosage, however, which offers some relief from the side effects of these drugs.

Morbidity and mortality rates

Vagal nerve stimulation is a relatively safe procedure, with no deaths attributed to the stimulation as of 2003. Pilot studies of 300 patients that were done prior to FDA approval of VNS reported the following complication rates: hoarseness, 37% of patients; coughing, 14%; voice alteration, 13%; chest pain, 12%; and nausea, 2%.


Some candidates for vagal nerve stimulation are also likely to be candidates for a corpus callosotomy , temporal lobectomy, or other surgical procedures.

See also Hemispherectomy .



Devinsky, O. A Guide to Understanding and Living with Epilepsy. Philadelphia: E. A. Davis, 1994.

"Seizure Disorders." Section 14, Chapter 172 in The Merck Manual of Diagnosis and Therapy , edited by Mark H. Beers, MD, and Robert Berkow, MD. Whitehouse Station, NJ: Merck Research Laboratories, 1999.


Rielo, Diego, MD, and Selim R. Benbadis, MD. "Vagus Nerve Stimulation." eMedicine , April 12, 2002 [June 10, 2003]. .


American Association of Neurological Surgeons (AANS). 5550 Meadowbrook Drive, Rolling Meadows, IL 60008. (847) 378-0500. .

Epilepsy Foundation. 4351 Garden City Drive, Landover, MD 20785-7223. (800) 332-1000. .

Richard Robinson


The implanting of a VNS device is performed by a neurosurgeon in a hospital, in consultation with a neurologist.


User Contributions:

Sue Theisen
Is the stimulator ever removed if it is not successful?
Is there long term effects of this procedure-such as vagal nerve damage?
If it helps control the seizures does it continue to help seizures indefinitely or does the effect diminish with time as medications have?
Martha Collignon de Gómez
I have been suffering from chronic migraines and depression for almost 20 years now. I have tried Lexapro, Vivactil and Prozac to treat the depression. Antiinflamatories ibuprofen, Aleve, Excedrin and profenid.
Imitrex (which I take almost every other day), do takes care of the pain.
The only medicine that helped diminish the frequency of my migraines was Topamax, but one of the side effects, (really spaced out), was unbearable.
If an antiepileptic drug considerably helpes me reduce the migraines and at the same time I suffer from chronic depression wouldn´t the VNS be an option for me?
I am willing to try it regardless the lack of evidence or trials proving it´s effectiveness on migraines.
Thank you very much.
I have had severe chronic nerve pain in my r inner ear that radiates up and inside the R side of my head. The symptoms are severe: constant burning, extreme tingling and electric shock sensations that start in the auricle of the r inner ear and go up and inside the r side of my head. I have had this pain for over 6 years. I was an RN but have been unable to work for over 2 years. Of course, I am on narcotics for this pain. sometimes they work and sometimes they don't. I just got approved for disability. would a nerve stimulator be appropriate for me, and where would it be placed. What is the cost and the general success rate? The pain is so bad that I have lost over 35 pounds because I can not eat when the pain is so intense; I am underweight and only weigh 118 pounds and am 5ft 8inches tall. Also I am on medicare now and wonder if they will pay for it. This pain basically ruined my life and I lost everything : my career, car and my own place to live. It is horrible. I had worked for 33 years of my life fulltime and raised a daughter totally by myself so I am not just a wimp. When I say I am in pain it definitely is the truth. Can you respond to this.
balinder chahal,
My 19 yr old son was hit by a car nearly 2 yrs ago sustaining a severe traumatic brain injury. 10 months after the accident he began to have grand mal seizures due to sudden onset seizure disorder related to his TBI. He's been on 7 different anit-seizure meds & each have caused horrible reactions, none have properly controlled the seizures. We are seriously considering the VNS & need to know the detailed risk factors as he seems to experience all the one-in-a-million things in the fine print! Do most patients with a VNS stop their anti-seizure meds? What ratio of VNS patients are TBI/SOSD patients rather than epileptic? We're seeing his neurologist on July 13th & planning on discussing the matter at length. Any additional input would be greatly appreciated.
u may want to read this dad.. its some good information i found on my surgery
I got this stupid implant when I was 8 and it didn't do a damn thing! I've been doing som research and most surgeons are afraid to take this piece of shit out! My seizures got worse after a few weeks of having it in. Just last year I had a temporal lobectomy (aka a surgery that actually does help! [that is if it is in your temporal lobe. {mine was left temporal lobe, but right temporal lobectomies have some higher risks.}]). After the temporal lobectomy I've been slowly getting off my medications and as of this past august I'm 2 years with no seizures.
P.S. Does anyone here know of a surgeon that is willing to remove the whole VNS???
I have had a VNS for about 4 years. Everything is doing great till this afternoon. I was using 120 volt electric grinder. It seems like my VNS started going off. Could it be the grinder making this happen or could the battery be going out.
i started having seizures when i was 15. and now im 38. ive been on all kinds of meds. some worked,some didnt. what started my seizures was gentic. they say seizures aint gentic, but i dont agree, 2- of my sisters,my oldest son,his dad and his uncle has oldest son got it from my side and his dad's side.ive had 2- v.n.s. first one didnt work that well, they say after 10 years the battery aint no good. so, i had to go for another one.. after about a few years later my dr. wanted to check it,and i told him no i dont want you to check it, just leave it alone.. every time that thing is being checked i end up having a seizure. so, ive turned it off.since ive had it off im doing pretty good.i got my drivers license back.and it feels good to be independent again..i can live my life " normal " again. so, if i had the choice to do it again, I WOULDNT DO IT AT ALL!!! IF YOU HAVE ANY QUESTIONS PLEASE CONTACT ME...
I got the first V.N.S. in my state (minnesota) about 14 years ago. I have had a second replacement 8 years later and hopefully will have it changed again next year. The V.N.S. has helped me control my seizures 100 percent. I had brain surgery, been on the ketogenic diet and can't tell you how many different med changes. The VNS has helped improve my life 100 percent. The only side effect I get from it is, when the implosives are going off my voice does get horse for 30 seconds. My friends can still understand me and I am okay with that. I didn't have any other side effects from it. The first one I had they made me stay over night at the hospital, since I was the first one getting it. The next time I got it, I was only in recovery room for two hours and then went home. I never lost any energy. I know it's getting close to getting a new one now, because I only have about 7 months before I need a new one. From the VNS I got to throw away my last helmet. I wore a helmet 15 years before that. My VNS last twice as long also, because I don't use the magnet. My seizures are so short, the time you get the magnet out, it's over. I only use the magnet if I am doing public speaking to schools, so they can understand me.
I have had the VNS since April 2011...My voice still changes and now i get a painful sharp burning sensation right around the vns..anybody out there that knows whats going on with me please help
Marla Scott
great web site..lots of answers for ppl out there that may consider this VNS..check out the mayo clinic site for VNS..I am 46 and considering this surgery..not only was i diagnosed in 08 with ASD(adult seizure disorder)..I have tried every medicine it there but my body doesn't take to drugs very well..I refuse electrode shock, no thank you!!I have had very severe head trauma, and most of my pain is on the left side of my head..I have migraines for days..took topamax for awhile, loved the weight loss side affect, but after some time it just didnt work. This is my 7th medication, and 3rd neurologists. I pray this one figures something out.
Dion Ryan
I have had 2 VGN Stimulators done.Neither time worked. I have grandma seizures ,So I opted for the neuro-cranial brain surgery. Problem is when the Doctor took out the VGN Stimulator,the wire was left in my neck.Does anyone know the side effects. Other than severe migraines and my face goes numb. What site can I visit reguarding this problem. Neurologist are keeping my in the dark.
My daughter is on her third vns. We have seen mixed results in seizure control. However, her vns is now sending out an IFI code. Does anyone have information on this code? I know it means Immediate Follow Up is needed but haven't been able to find much more than that.
My son is going in for his pre-op in Oct. I was just reading up on this VNS. I'm concerned, because he is an athlete. He plays basketball, I haven't seen any responces of athletes who have had this procedure done. He is on medications now, he is aloud to play sports! But he doesn't like to take his meds! They make him drousy, along with some of the other side effects. Can I get an athletes take on this procedure please? Thanks.
My son who is now 7 years old, had a stroke when he was just an infant. He suffers from a seizure disorder called Lennox Gastaut Syndrome. He has 3-4 different types of seizures, which are not controlled with any medication. we are going to talk to a surgeon about a possible VNS placement. I am just curious of side affects? Will it work for my son? Has anyone had a oung child get a VNS before?
I've had my vns for 6 1/2 years. I have been to my neurologist 3x this year because the vns cannot hold its programmed setting. Can anyone tell me if it is time for me to consider a battery replacement. (listen to me...I sound like the energizer bunny.) Thanks
Margaret Curry
My daughter has had the VNS for several years. It is not working now probably needing a new battery. She is having problems & I would like for her to have a MRI which is not possible with this implanted. Is there a possibility for removal of this device (leaders also) so she can get the MRI. Thanks for any information you can give me. Blessings, Margaret

I have had a VNS for 6 years. Cyberonics has come out with new information that allowed me to have an MRI. It is called "passive MRI." The MRI machine is fitted with a coil of some kind. The VNS is turned off for the duration of the scan. I had this done about 6 months ago and my neurologist got the pictures he was looking for. Make sure you have your Cyberonics rep on hand to explain exactly what needs to be done.
I have been fighting seizures all my life they are pretty bad i was not able to have the surgery done my Dr. wanted on the left side of my brain cause the right side was now being affected so i had the vns put in i only kept it in a little over a year cause my doctor didnt want to have it removed i finially said i had enough and made them take it out the migrains were killing me and are evern worse to this day from the vns i now have the leads in my head cause they couldnt be removed i suffer from neck pain and massive migrains daily that really affect my life did anyone have this same problem with the leads and migrains im always in so much pain
write me
I am on my second VNS. 1st one lasted four years and this one is dying out a couple weeks short of two years. Has anyone else had problems like this? The machine helps with my seizures. Ask have small seizures all day which wipe me out but I can't see having to replace it every two years.
My daughter has seizures and I train seizure alert and response dogs. I have a new young lady who has a VNS and it has done very well for her. We are now training a dog for her. First to alert so she can handle the situation, then to bring the magnet to the chip for her if she is unresponsive. For those with the chip, how often are you actually having full seizures with the chip, and if the magnet is accidently passed over the chip twice would it cause problems? The VNS is new to me so I dont want to do anything wrong here.
Sue Baker
I had my vagus nerve stimulater removed The DR refused to remove the wire around the vagus nerve Last week I went to have a MRI for a possible blood clot in my brain I was not told this by my neurosurgen until the hospitol called him and asked if an MRI could be done Because the wire had been cut I can never have an MRI
Hi Gigi
I have had a seizure dog for almost 10 years now. And before I had my VNS inplant I called the company cyberonics many times. I wanted to know if she would still be able to alert me before one happened. They told me they had never done a study on this before. Well I can tell you this she would always stay very close to me 24 hours before I had a grand mal. I debated over several months because she was my security and I did not want to lose her ability to warn me because of a machine. God only knows how these wonderful animals can OUT DO a machine. But she can and has not lost that sense even though I had a mechanical device put in. As for how many times you swipe the magnet over the device it does not matter. This is per my Neuro Surgeon and I have swiped as many as 6-7 times. I was having seizures 24-7 but they were small enough I didn't know it. It was found by a 3 day study. The grand mal's were 1-2 weekly. If I can answer any other questions for you please feel free to e-mail. God bless you for training these dogs. My next dog will be trained to swipe the magnet for me. The training school is out of Atlanta GA. I would cut the wrist band down to the size of the dogs mouth leaving just enough room for her to pick up the magnet which could be attached to the bottom of the ref so the dog would know to always run there,or I would try putting it on her collar so if the pt falls down the dog can just lay her neck right ontop of the patients chest (magnet implant)the dog will feel the two magnets connect and if the dog does not get a respond she can lay down over her chest again. The dog will not hurt her by just laying her neck ontop of the VNS by her weight. It also would work better on the collar when the patient leaves the house for outings. Believe me I would rather have a dog across my chest trying to stop a seizure then having nothing at all. God Bless you hope I have been helpful.
Hi Gigi
Just to be safe I would get in contact with the VNS manufacturer Cyberonics for the correct information. I have had the device for three years. When you swipe the magnet over the stimulator it raises the voltage of the "shock". I wouldn't keep repeating it unless you needed to. For one thing, if I'm a case it hurts some people. Also the VNS can affect the Heart Rate. The main use of the VNS magnet is to help interrupt the seizure. If the seizure is over it will do nothing. It does not revive a person from a seizure. Contact the experts 1-800-332-1375. I hope this helps. Cheryl
Does anyone have any experience with having a second VNS implanted after the first one was removed. My 4yr old son had one put in in August but due to an infection it had to be removed a month later. It helped him immensely so I really hope they can put another one in. He went from 8-10 seizures a week to only 3 the whole month he had it in. Thanks for any input.
Rosalyn Ditty
My brother has VNS implant 10 years ago. The battery quit 5 years ago. The Dr that did the implant has left the state. He has had nothing but a run around in follow up care or battery renewal. He is now a medicade patient and is living in a home due to depression. Is there any doctor in the Kansas City, Mo area that can lend advice on what can be done?
... I can't seem to find anyone who has been 100% successful w/ the removal of both the generator AND the lead wire. I had a VNS put in 2011, & had the generator replaced once. I've never gotten a headache or taken an asprin in my life, since I'm so many anti-convulsant drugs ~!~ (Carbatrol, Topamax & Zonegram) I'm 54 yrs. old w/ actually a minor condition which at any level for ALL of us is a pain in the BALLS ~!~ My seizures occur while I'm asleep. They were happening about 2wice every mo. until I started the medication 'Onfi' in the beginning of 2014. With such success, I'm down to about 1 every 2 mo. AND ... w/ the decision to remove my VNS. As single, charming & good looking as I am ... (lol)... I don't have a lady friend next to me while I'm sleeping to swipe that magnet ... not ALL the time ~!~ And that's the only way that VNS is effective for me. But as I was told ... to remove that lead wire around the vagus nerve, is not a 25 minute vasectomy office visit ~!~ So, I'm still waiting for a response to find out if the surgeon who put the apparatus IN, can unwrap that lead wire with no nerve damage or infections.
I dont think they can take the wire out. I was told it was too big a risk to your vegal nerve. Ive had 2. I was promised the moon n the stars. I don't know about any of you but i was told the implant when its originally implanted must be off for 30days to ensure the healing of the nerve due to its importance (why they don't like to take them out). Was anyone else told this? I ask because mine was left on, no one listened to me so i screamed and vomired and slept in the bathroom for 4days before being carried to the ER. And much like someone mentioned above i also seize every time its messed with, i cant tolerate an appropriate level of electricity, basically i hate this thing. I look at my scars and this lump in my chest and i see pain, disappointment, asshole surgeons, the day i almost died, and about $40,000 of debt they want me to pay them. For what? The 15pills i still have to takwith it? Or the fact that i think they messed it up? Has anyone had any experience with having it put in turned on? (Sorry if i sound cranky, i just had a seizure the other day and im still bummed. You're never NOT bummed) .
After an unsuccessful craniotomy in April 2006 to control my seizures, I agreed to give the VNS a try. It too, provided no relief from my grand mal seizures. Instead it cut off my airway anytime I got my heart rate up. If I wanted to work out I had to tape the magnet over it so I could breathe. I finally had it removed about a year later. My wire was left in, due to the fear of harm that may be caused by removing it. I have had probably 5 MRI's since then, with no problem. Now, 6 years later I am told I need another one on my neck and the surgery center here won't allow it for that reason.

A note to Sal on the Topamax...don't stay on that drug for too is referred to as Stupimax by physicians for a reason!! I am a 52 year old female with a history of grand mal seizures since age 14. I have been through a gamete of medications, and that was one of the worst! It caused side effects that I didn't even realize I was having until they took me off it and felt so much better!! I also take Onfi, and have had some good outcomes with that.
Great so my brother who has epilepsy due to a fall, after all these lab years with the "epilepsy specialist"(play-"who dares question the great oz"), he's had i believe run the course (?) of Epilepsy seizure drugs.Finally after 25 years the great neurologist decides to retire. handing over my brother to her assistant the new "epilepsy guru". Okay so they say get the vns, get the vns-althoUgh its your decision. Gets the thing put on. Okay grand mal seizures are gone for the most part(or very controlled), but the pet mal seizures are whats keeping him awake . And you have to be careful of over swiping for the petites. Now, currently he is under so many meds, its like watching a CARDIO patient. At times he's lucid,most other times he's out of it with slow motor and cognitive function. And falls, forget it.This last year and this year he has fallen at least 20-25 times thus the helmet apparatus.His legs are so weAk from sleeping so much. He has ot specilaist coming,nurses speech therapist all visiting the house throughout the day-usually have to wake him up an hour before. He has major depression, but so what he's already on Lexapro...I dont know,was the VNS worth it? its hard because you can't converse with him because he's so MEDICATION up ,
Ijust dont know.
Dolly Clinard
My doctor just increased my VNS yesterday and it seems to be going off every three minutes and my throat feels like it is closing and i cant breathe for a few seconds. Has anyone else dealt with this?
I am 48. I have had epilepsy since I was in my twenties. In Nov it would have been 1 year that I would have had my VNS. I had surgery Friday Oct 9 to remove it. My biggest regret was not doing research about the VNS . The VNS was turned on for maybe a total of 2mths and I had so many problems that I had the doctor turn it off. Some of those problems were :increase in seizures, coughing, hoarseness, hard to breathe, the VNS put tremendous stress on my body. I did not feel good, I became very depressed . All I am saying is make sure you do plenty of research. And for everyone that it has helped I could not be happier for you.
I had accident in 2011 and broke my wire on my vagus nerve stimulation . I wasn't taken to hospital and the seizures went to another level I need compensation because it's financially ruined me because I didn't know what was wrong with me it was only until my battery ran out I started my fight back . This changed my life I walked into a sports club to play pool in irland and as we started to play pool my opponent took his shot and the ball hit my chest forcing my wire to brake . As I went to take my shot I put my hand on my on my chest and fell to floor and hit my head . The people I were with didn't bother taking me to hospital I was just put in back of car . When I got back to England I went to hospital after two seizures .Because I was in a day dream I was thrown in a police cell then taken back up to hospital and hang cuffed to bed . Two years later they realised that my wire was broke after battery had ran out .Along the way up until now I have had so many seizures can anyone give advice if they have been treated the same way
I've had my vns implant for four months. Still have side effects of shortness of breath, hoarseness, throat soreness, and Grand Mal seizures. Checking into a new neurologist and am considering having it turned off. May work for some but DEFINTELY look into the side effects.
I started having a sharp pain in my chest after they changed the setting and that has never happened before. Ive had my VNS since 2003 and a new battery since 2013. I thought I was having heart problems. Will it go away?
i had the vns for about almost 4 months,it did bring the seizures down some,not alot,the pain from being smaller and in my chest was painful,the device broke from the stitching a month into the first surgery went back into surgery to move it down some,then it ended up near my armpit area where my arm presses against my body,i had it removed,hurt my throat,coughing,and breathing was difficult alot as well,i then third surgery had it removed,was just too much to handle,not to mention the depression,the tiredness,and not feeling good,the worst was every time i healed i had to go right back into surgery to start healing process over again,the headaches didnt feel well either,i now wish i never had it done,now the wire has caused major scar tissue,and he had to leave wrapped around the vagus nerve! please look deep into this if you are looking into it! i feel some it is for but as for me it was not! now i hope the nightmare is over from it!
I've had the vns implanted in me for 13 yrs and it was giving me so many problems. I just had gotten the pace maker part taken out. Due to high risk of the wire on the nerve of the neck I had to keep that. Those of you who has gotten it out, how long does it take to heal? I feel so weak and not myself. My biggest fear is me having seizures again. I pray to god I don't!
I've j had a VNS for many years now. It didn't stop my lifelong epilepsy, but it cut down the length of the seizures. But this year, while they were trying to replace a worn-out one, they got it infected and then decided to take it out, leaving the lead there from neck to nerve. I suppose it was because they either couldn't or didn't want to do it. They're pumping me full of antibiotics every day to try and solve the mess. Has anyone had a trouble-free removal of the lead??
I am on four seizure meds and am considering the vns. I wanted to know if I still take all my meds before having the implant
Yes still take meds with vns. I have vns doesn't help still have seizures. And take 4 meds daily.
I have had my VNS for 11 years, my first lasted 5 years and I am in my 6th year with the second one. I have not been on any meds since 2009 and am currently 17 months seizure free. This simulator has worked great for me I wish everyone had the same luck.
I have had the VNS I. Me since Nov 7th 2018 and ooo was I pissed. First they don't keep ya at the hospital for observation to make sure nothing goes wrong after. Then I found out I was being started on a jolt 3Xs stronger than a normal one for two weeks. Then when the Neurologist fixes it he said that the VNS is their to help not replace my pills. And then said he cant see me being off pills ever. And I still have seizures from time to time. The VNS is bullshit and I would warn other epileptics not to get it unless you like torture the rest of your life. Loosing your voice . puking all the time. Loss of appetite. I cant even eat the foods I use to love because I'm scares ill puke it up. Hell since the surgery I started at 233 and I'm now 168.
Is there any negative reason the implant can be removed from a deceased user. and sold to a new user assuming a new battery is inserted?
I had the vns put in 2005. I was misdiagnosed bi-polar and the vns was put for that. The meds they had me on gave me medication induced grandmal seizures. In 2012 I had it removed the stimulator and leads, the electrodes around my vagal nerve are still there. Scar tissue and the neurosurgeon wouldnt touch it. I have medical issues that a ct scan isnt my best option, I need an MRI. They say I cant because of the heating up and damage that could cause. My question is, I want the electrode nerve . I never wanted this stimulator, I never needed it. Now its preventing me getting the tests I need for a better quality of life. Please help!
I definitely understand this. I suffer from peti-mal and grandma seizures. I had it placed 3/2014 and was under the impression I would be able to eventually stop taking the medication and the VNS would replace that. Unfortunately the shock is unbearable and the migraines are severe and I am on the phones during the day so my voice is not only embarrassing but some people don't think its the same person they were talking to. I want this out because I don't get to reap the benefits. I have still had some seizures but I don't have an ora so when I suddenly have them I cant wand myself to send a sudden shock. I would advise to ask ask ask as many questions as you can think of. Oh and by the way, my peti mal seizures don't stop
Ive had my vns for 5 years this july. I'm not sure if its working right and when it shocks me I feel it in my chin now. I want it out. I have not had a seizure in 3 years and I think my meds are doing fine for control. I'm going to talk with my pcp and go back to my neuro to see if they can make a plan to get it out. I haven't heard anything good about getting it removed most doctors tell you just turn it off. When I was informed by the cyber rep they also told me I could have mri if needed and I cant. They totally lied about that and had I known that at the time I would not had got it. I'm getting migrains now and it seems its just not like it was the first 4 and a half years. I feel dooped and I'm upset they lied to me and get away with it.
I have at least 3 types of epileptic seizures and no meds have helped they've just kept me on klonopin for over a year. While they always tell me how bad and addicting the medication is everytime I run out they still keep giving me months worth of refills. I finally have this vague nerve stimulator being put in 2 months from now and I'm scared. Not just the coments I've read here but my own fears. Am I going to be in pain, will I be able to eat. What will this surgery be like for someone who's never had real surgery before. Please someone who's gone through it run me down,, not the a-hole doctor/surgeon I talked to.

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