Ureteral stenting




Definition

A ureteral stent is a thin, flexible tube threaded into the ureter to help urine drain from the kidney to the bladder or to an external collection system.


Purpose

Urine is normally carried from the kidneys to the bladder via a pair of long, narrow tubes called ureters (each kidney is connected to one ureter). A ureter may become obstructed as a result of a number of conditions including kidney stones, tumors, blood clots, postsurgical swelling, or infection. A ureteral stent is placed in the ureter to restore the flow of urine to the bladder. Ureteral stents may be used in patients with active kidney infection or with diseased bladders (e.g., as a result of cancer or radiation therapy). Alternatively, ureteral stents may be used during or after urinary tract surgical procedures to provide a mold around which healing can occur, to divert the urinary flow away from areas of leakage, to manipulate kidney stones or prevent stone migration prior to treatment, or to make the ureters more easily identifiable during difficult surgical procedures. The stent may remain in place on a short-term (days to weeks) or long-term (weeks to months) basis.


Demographics

Chronic blockage of a ureter affects approximately five individuals out of every 1,000; acute blockage affects one out of every 1,000. Bilateral obstruction (blockage to both ureters) is more rare; chronic blockage affects one individual per 1,000 people, and acute blockage affects five per 10,000.


Description

The size, shape, and material of the ureteral stent to be used depends on the patient's anatomy and the reason why the stent is required. Most stents are 5–12 inches (12–30 cm) in length, and have a diameter of 0.06–0.2 inches (1.5–6 mm). One or both ends of the stent may be coiled (called a pigtail stent) to prevent it from moving out of place; an open-ended stent is better suited for patients who require temporary drainage. In some instances, one end of the stent has a thread attached to it that extends through the bladder and urethra to the outside of the body; this aids in stent removal. The stent material must be flexible, durable, non-reactive, and radiopaque (visible on an x ray).

The patient is usually placed under general anesthesia for stent insertion; this ensures the physician that the patient will remain relaxed and will not move during the procedure. A cystoscope (a thin, telescope-like instrument) is inserted into the urethra to the bladder, and the opening to the ureter to be stented is identified. In some instances, a guide wire is inserted into the ureter under the aid of a fluoroscope (an imaging device that uses x rays to visualize structures on a fluorescent screen). The guide wire provides a path for the placement of the stent, which is advanced over the wire. Once the stent is in place, the guide wire and cystoscope are removed. Patients who fail this method of ureteral stenting may have the stent placed percutaneously (through the skin), into the kidney, and subsequently into the ureter.

A stent that has an attached thread may be pulled out by a physician in an office setting. Cystoscopy may also be used to remove a stent.


Diagnosis/Preparation

A number of different technologies aid in the diagnosis of ureteral obstruction. These include:

  • cystoscopy (a procedure in which a thin, tubular instrument is used to visualize the interior of the bladder)
  • ultrasonography (an imaging technique that uses high-frequency sounds waves to visualize structures inside the body)
  • computed tomography (an imaging technique that uses x rays to produce two-dimensional cross-sections on a viewing screen)
  • pyelography (x rays taken of the urinary tract after a contrast dye has been injected into a vein or into the kidney, ureter, or bladder)

Prior to ureteral stenting, the procedure should be thoroughly explained by a medical professional. No food or drink is permitted after midnight the night before surgery. The patient wears a hospital gown during the procedure. If the stent insertion is performed with the aid of a cystoscope, the patient will assume a position that is typically used in a gynecological exam (lying on the back, with the legs flexed and supported by stirrups).

Aftercare

Stents must be periodically replaced to prevent fractures within the catheter wall or build-up of encrustation. Stent replacement is recommended approximately every six months; more often in patients who form stones.


Risks

Complications associated with ureteral stenting include:

  • bleeding (usually minor and easily treated, but occasionally requiring transfusion)
  • catheter migration or dislodgement (may require readjustment)
  • coiling of the stent within the ureter (may cause lower abdominal pain or flank pain on urination, urinary frequency, or blood in the urine)
  • introduction or worsening of infection
  • penetration of adjacent organs (e.g., bowel, gallbladder, or lungs)

Normal results

Normally, a ureteral stent re-establishes the flow of urine from the kidney to the bladder. Postoperative urine flow will be monitored to ensure the stent has not been dislodged or obstructed.


Morbidity and mortality rates

Serious complications occur in approximately 4% of patients undergoing ureteral stenting, with minor complications in another 10%.

Alternatives

If a ureter is obstructed and ureteral stenting is not possible, a nephrostomy may be performed. During this procedure, a tube is placed through the skin on the patient's back, into the area of the kidney that collects urine. The tube may be connected to an external drainage bag. In other cases, the tube is connected directly from the kidney to the bladder.


Resources

BOOKS

Su, Li-Ming & R. Ernest Sosa. "Ureteroscopy and Retrograde Ureteral Access." (Chapter 97) In Campbell's Urology, 8th ed., edited by Patrick C. Walsh. Philadelphia: Elsevier Science, 2002.

ORGANIZATIONS

American Urological Association. 1120 North Charles Street, Baltimore, MD 21201. (410) 727-1100. http://www.auanet.org .

OTHER

"Extrinsic Obstruction of the Ureter." UrologyHealth.org . [cited May 19, 2003] <http://www.urologyhealth.org/adult/index.cfm?cat=01&topic 93> .

Sutherland, Suzette E. and Martin I. Resnick. "Urinary Tract Obstruction." eMedicine. May 6, 2002 [cited May 19, 2003] http://www.emedicine.com/med/topic2782.htm .

Kathleen D. Wright, R.N. Stephanie Dionne Sherk

WHO PERFORMS THE PROCEDURE AND WHERE IS IT PERFORMED?



Ureteral stenting is typically performed in a hospital by an interventional radiologist (a physician who specializes in the treatment of medical disorders using specialized imaging techniques) or a urologist (a physician who specializes in the diagnosis and treatment of diseases of the urinary tract and genital organs).

QUESTIONS TO ASK THE DOCTOR



  • Why is ureteral stenting recommended?
  • What diagnostic tests will be performed prior to the stenting procedure?
  • What technique will be used to place the stent?
  • What type of stent will be used, and when will it be removed?
  • Are there any alternatives to ureteral stenting?

User Contributions:

Janet
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Jun 6, 2007 @ 6:18 pm
Can i change the physician who place the stent? to a different physician.
Naleni T. Maharaj
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Aug 16, 2007 @ 5:17 pm
My sisterinlaw had a stent put in to help pass a kidney stone. She wanted to know how long she could keep the stent in and if it could cause any complications. I found this article very easy to understand and informative.
Kipp
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Sep 22, 2007 @ 11:23 pm
I currently have a ureteral stent which was placed 4 days ago. This was placed secondary to having a stone lodged in my distal ureter for 2 weeks and the ureter became inflamed. I had this same procedure 10 years ago but I forgot about the pain associated with the stent. I have had a lot of red blood passing and just Today it has begun to clear. However the severe renal colic associated with the stent and while starting and stopping my stream are still present. I get my stent removed on Wednesday and that portion I remember WELL! I don't look forward to this but I have been assured by my urologist that to remove the stone and chance the actual (obstruction) which is now the inflamed ureter, that the severe agonizing pain of the stone would remain the same without stenting and assuring an outflow for the urine.
Wish me luck I hope to give a stellar report post removal! PS I have tried heat, ice, major pain meds and muscle relaxers! I believe the muscle relaxer worked the best. In my situation I believe the pain/ colic in my kidney and ureter that I have now are muscle spasms as they are very sharp and very frequent pre and post void.
Fladmir
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Dec 5, 2007 @ 3:03 am
From my work on the role of uretral stenting in obstrective uropathy ,I found that extra luminal obstruction cause more failure in the managment of obstructive uropathy by DJS.
Frances
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Dec 26, 2007 @ 1:13 pm
My husband was diagnosed with a Kidney stone on 12/12/07. He underwent a cystoscopy and had a stent placed all the way up to his kidney because the kidney stone was so large and was blocking urine passage from the kidney to the bladder. Then the following week he underwent major surgery on 12/19/07 to remove the stone and the first stent. The zone was blasted by laser while the stent was removed and another stent was inserted. On 12/24/07 he got the stent removed. The doctor told him that there will be followup in March. About twenty hours later he woke up with pain in his left side the location where the stone and stent were except that he was able to go to the bathroom and was doing things. He took a painkiller and he was fine all day. Then at the same time today he had the same pain and took another painkiller. Does anybody have any idea what is going on. Please let me know.

Thank you
Tammy
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Jan 7, 2008 @ 6:18 pm
I am 34 years old and started getting kidney stones in Sept. of 2006. Recently since Oct. 31, 2007 I have had 4. 3 in my left kidney and one in my right. It was recommended that I get a stent in my left kidney. I was told there would be discomfort....that is a lie...this is extreme pain! I would honestly take 10 kindey stones to one stent! Does someone know if the pain ever stops? I called my doctor and all he said was take more pain meds and drink water. Yeah I am doing all of that but it's not working! Please help!
Graham
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Mar 6, 2008 @ 10:22 pm
I had a stent put in a week ago. I can tell you the pain I have in everytime I urinate has never gone away. I feel a severe pain in my kidney area everytime. Its uncomfortable walking at times. I am due to have my stent removed on Tues. 10 days after it was put in. I am really nervous about getting it removed because the doc said he will not put me to sleep. I wish I could of passed the stone then to deal with this uncomfortable stent.
Jennifer
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Apr 7, 2008 @ 1:13 pm
I recently was admited to the hospital with flank pain and was sent immediately to the OB department since I was 22 weeks pregnant at the time. After several days of tests and waiting for possible kidney stones to pass I had a ureter stent put in. I had extreme pain after the procedure and now am dealing with taking strong pain meds everyday as well as ditropan, which is suppose to ease the "gotta go" feeling most commonly associated with a UTI. I was told the stent would be left in until after I give birth in July!, but I'm not so sure I can handle the pain during urination, throughout the day, and most often when active. I am also having to deal with weening off of the pain meds which make life possible due to the fact that the baby is in danger of being addicted to the meds. It is a terrible ordeal and I sympathize with anyone that is going through this. On top of it all I am a teacher and being on my feet all day come with the territory. I am now, also, having to decide to go on disability because of the dang thing.
Julie
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Apr 19, 2008 @ 10:22 pm
I had a stent inserted in my right ureter due to an 8.5mm stone blocking my urine flow from the kidney. I took meds to help with the discomfort. I was unable to do much for the first nine days but then i was able to resume my normal activities. The more physical activity i did the more blood in my urine. No pain though thanks to the meds. I had the stent in for four weeks and then had my kidney stone lasered and the stent removed. I still get some pain in my kidney nine months later. My urologist told me that because the pain isn't constant i shouldn't worry about it. Am seeing GP tomorrow.
NYStone
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Apr 29, 2008 @ 10:10 am
For those that are having pain with a stent make sure you are taking a bladder relaxant like Deterol(spelling) and Pyridium will help with urine irritation. I had a stent put in 4/21 and had bladder spasms everytime I urinated (every hour). Once I got the bladder spasm pill things were better although I was basically out of work for a week. The Dr. never prescribed the bladder relaxant, I had to ask for it.

My experience has been that the Dr. has not been very infromative and unless I have asked about something specifically, it has not been addressed.

My stone started on 2/14/08. I had Lithotripsy done in March. The Dr. scheduled me for Lithotripsy again in April then told me 2 days before at the checkup that it was too soon to have Litho done again. When I asked why he had scheduled me again for Litho he didn't say anything.

On 4/21 I had the Cysto/Laser/Stent done. My followup appointment is today so we'll see where things go from here.
I'll try to update the forum. Since the procedure on 4/21 I have only passed one fragment.
NYStone
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Apr 30, 2008 @ 7:19 pm
Well I had my stent removed at the Dr. Office yesterday afternoon.
That was an experience I'll never forget. The procedure was fairly quick and only about 3 bouts of pain that made me raise up off the table.

About a half hour after the stent was out I started getting cramps like I had when the stent was first in which I believe are bladder spasms.

My wife called the urologist and asked for a detrol order to be phoned to the pharmacy. About an hour latter the nurse from the office called and said the Dr. thinks you'll be fine and isn't going to call the order in. I replied that it was easy for him to say that and hung up.

The next call was to my primary doctor's office and left a message with the answering service. A while later he called back and agreed to call in the order.

I finally got a Detrol LA 4mg capsule around 6:45pm and by 9pm my cramps/spasms where gone.

Moral of the story: Make sure you have a prescription for DETROL LA 4MG when you leave from surgery and when you leave from the stent removal. The PHENAZOPYRID 200MG TAB are good for any irritation of your urinary system so you should be sure to ask for them as well for after your surgery and stent removal.

Because of the arrogance of my FORMER urologist I was in the worst pain of my life from 4:15 to 9:00 pm.

I changed my two month followup appointment to another Dr. in the group today.

Good luck to anybody else who has to go through the procedure.
Jerome
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May 2, 2008 @ 1:01 am
I had my ureter stent insertion the other day, April 30 and currently experiencing pain during urination and blood still present in my urine. Is this normal? There is discomfort in my bladder and it seems it is always full. Please Help....
Cyd
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May 7, 2008 @ 3:15 pm
On March 31, I had a ureteral stent placed in my left kidney because I had a 7mm stone that could not pass. The surgery to place the stent was done under anesthesia. I experienced very bloody urine for the first week and I also experienced the most uncomfortable "tugging" feeling for the entire time the stent was in place. For the first three weeks, I experienced considerable pain voiding which eventually slowed down to just mild discomfort. I did not miss one day's work other than the day of the surgery, but wished I could stay at home and pop Vicodin around the clock. I received lithotrispy (sound waves to break up the stone) two weeks after the stent was in place. This procedure was successful and not painful. My stent was removed on May 6 in my doctor's office. I worried for days about the removal process, but it was not that bad. I was so excited to get the stent out that I would have just about done anything. The procedure took about 3 minutes. It was very uncomfortable even with the area numbed, but it honestly only lasted a couple of minutes. I went back to work within 10 minutes of the procedure and only experienced mild buring when voiding. All is well for now...I just hope I never have this experience again.
April
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May 17, 2008 @ 12:12 pm
I have an infection in my kidney as well as a 5mm kidney stone lodge in the narrowest part of my urethra. Yesterday I had surgery to remove the stone (which unbelievable had passed the pervious night) and to place a stent so that the infected urine can pass through to the kidneys. The infection is Cipro resistant....


Last night I accidently tugged on the string attached to the stent when wiping, on now it is most difficult to sit. The string is out about 4” now. Could I have dislodged the stent and pulled it into my bladder? I also do not seem to be passing as much urine now.

Yesterday, the pain from the stent was unbelievable. It is not so bad now, but my kidney pain is terrible. I am also nauseous.

I called the dr on duty and he tells me to stop drinking so much fluid… and not to worry about the stent. I do not think I should be feeling a “pokie” pain when I sit down.
Judy
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Jun 4, 2008 @ 11:11 am
I recently had a kidney stone removed and a stent placed. Never in my life have I had so much pain. I have had children, I have had kidney stones in the past, but nothing was as painful as the stent placement. Going into surgery, the dr. told me I would be fine and could go back to work the following day. What a joke!!! The spasms were so bad, that I never got out of recovery for 6 hours after surgery and I was in intense pain for the next 4 days. I had to go back to the dr. for and injection for the pain and the day she removed my stent was as bad as the day she put it in. I did not go back to work for a week. It has now been two days since the removal of the stent and the pain has finally subsided. My mother had this done with no problems. If the Dr. ever told me again I would have to have this done, there is no way. I will never put up with that kind of pain again. I would rather pass the stone ( which was painful, but not as painful as the stent). So beware, they tell you it is nothing and believe me it was something....
Kirsty
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Jun 5, 2008 @ 3:03 am
I was diagnosed with a 7mm kidney stone at 26wks pregnant, a stent was put in an I am told I just have to put up with it unitl after I have this kiddo. I am now 31 wks and have been able to do nothing except lay in bed in pain and go to the toilet in pain. I am unable to do anything except this. As I am pregnant I am limited on the pain relief I am able to take. Has anyone else been in this situation and can offer some advice on how I can deal with it. Also how long after birth was the stone able to be deal with and the stent remove?
THanks
Laura
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Jun 16, 2008 @ 4:16 pm
I am 32 weeks pregnant and in so much pain, first because of the kidney stones and now because of the stent. I had one placed on 06-13 and (I know...it's only been three days but) the pain has not eased up. I'll admit, The sharp kidney pain I was having prior to the procedure has been easeed some but now I have a painful pressure feeling on my bladder and lower back all the time. When I do void, it feels like the muscles in my bladder are fighting against me as it hurts so much. It also hurts to just stand straight up and I find myself walking hunched over a bit. My urine is very bloddy. My doctor says all this is normal "discomfort" which I will have to deal with until after the birth of my son. He also prescribed Vicodin but I am really trying to avoid it because of the baby. All I feel I can do right now is take it easy... really easy... and try not to move around to much. I'm drinking tons of water but I was wondering if anyone else has any ideas about how to relieve the pain. I'm also wondering if anyone has any word of wisdom regarding the stent and labor of my child. I'm already scared of the labor pain since this is my first baby and am not sure what to expect with the added stent complications. Any advice? Thanks
judy
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Jun 20, 2008 @ 3:15 pm
Laura- All I can tell you is the stent pain is bad, at least it was for me. I missed a week of work. The kidney stone is painful also...believe me...I had 2 children by natural childbirth and one of them weighted 9# and the other 10# and the pain of labor was bad but nothing as bad as the kidney stones or the stent. Rest assured, I think that your labor will be a breeze compared to the pain you are experiencing now...to put it in a different perspective....you are having all this pain for a kidney stone that you don't even want....you are having pain for a child that you want and that child will bring you joy and happiness for the rest of your life...!! Good luck with everything.
Jennifer E
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Jun 28, 2008 @ 2:14 pm
Oh Thank God for this web site! I felt that I was the only one on earth going through this brain numbing pain! I just had a stent put in on 6/20/08 and have been miserable every since! I was told that I have a 6.3mm stone that wont pass on its own. This whole ordeal has been "UNGODLY". Now I am afraid to have it removed because I have read everybody else's testimony to having it removed. I go in on 7/11 to have this thing removed, and hopefully I'll have encouraging news to my fellow sufferers!
Chris C
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Jun 29, 2008 @ 11:23 pm
Laura-I feel your pain. At 30 weeks pregnant (6/17) I had a stent put in for the 9.5mm stone I have on my right side. Now at 32 weeks, the pain has subsided, EXCEPT if I void too frequently, I feel a pinching/stabbing like pain! I have been put on disability and can hardly get out of bed. I was excited today because I felt okay enough for 15 minutes to run to CVS to pick up more Tylenol! This is my second pregnancy, and child labor is nothing like this...If you can put up with this thing for the next 6 weeks, you'll be able to have a natural childbirth that lasts only hours! Good luck, and Contrats on the baby boy...this is boy season!
teresa
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Jun 30, 2008 @ 12:12 pm
Hello all,
This is my 2nd or 3rd stent I have had. They told me I'd have it 14 days and then called and said 4+ weeks, I just cried... they pain has subcided a bit but I am still taking pain killers. I agree these things hurt worse than stones... It is like a pinching pain sometimes.
I have had 5 surgeries since January and I think the worst part is the stent.
I don't remember what the pain was like last time it was removed but I still can't wait to get it out. It is very hard to do much of anything. I had a PNL for a huge stone, then a uretoscopy, then Lithotripsy and because of the scar tissue there was a narrowing in the ureter they had to enlarge. They say I might have to have it again I sure hope not. Good luck everyone
Mike
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Jul 4, 2008 @ 11:11 am
Following two surgeries for stone removal I had stents back to back for a total of 8 weeks. This was not fun. My wife said that my personality changed since I was irritable most of the time due to, what the doctor calls "discomfort". I have another name for it....PAIN. I managed to cope with the use of "daddy's little helpers" (percocet) but it was still very difficult. I felt like I was disabled. Now I know what some people go through who have medical conditions that prevent them from living a normal life. I had the stent removed yesterday and I'm still experiencing cramps but I'm hopeful these will soon go away. By the way, the stent removal was "uncomfortable" but tolerable. The good news, the procedure is realy quick and then it's out... yea !! Here's hoping I never have to have another one.
Jennifer
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Jul 14, 2008 @ 3:15 pm
Well I had my stent removed on 7/11 and it wasnt as bad as I really expected it to be. The doctor said that my stone did not pass and matter of fact it went the other way toward my kidney. So since public aid doesnt pay for lithotripsy I just have to wait it out until the stone starts to move again and I go through all that pain again. I really dont know if I can go through all of that again. I am so frustrated. I just dont understand medicaid. Its not like I want a breast reduction! I have a kidney stone that I wont be able to pass on my own(6.3mm). Any suggestions anybody????? Signed, FRUSTRATED
Pam
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Jul 16, 2008 @ 5:17 pm
I am a 54 yr. old female who has lost 99% function of my left kidney due to an undiagnosed 10mm stone lodged in my urethral tract (my GP had been treating me for a "stubborn" UTI since January). When I finally insisted they use some hardware to aid in the UTI diagnosis process, they discovered the stone thru ultrasound and CT scan. I have had two laser surgeries, one to break up the stone and remove the fragments, and a second because they didn't retrieve all the fragments the first time. I had no problems with the surgeries, but the stents were actually more painful than the original pain caused by the slow death of my left kidney. I had the second stent removed 4 weeks ago and am still experiencing the same symptoms so insisted on another CT scan. Scan shows 2 stone fragments in the urethral tract and my urologist is stumped because "there are no stones there when I finish the surgery, but after I remove the stent stones appear again". He's especially perplexed because that kidney doesn't even work anymore so it's impossible for it to move stones into the urethral tract. Could these post-surgical stones actually be calcified stent deposits? Could he perhaps remove them and NOT put in a stent and I would be free of this pain? Any advice would be appreciated. I would seek another professional opinion but by all accounts his group is the best in this part of the state and within the group he's considered one of their best (young, Ivy League med school, etc.). I checked credentials and references ad nauseum and even called some former patients. Even if I get no answers, this website helps me to vent because my family is sick of me being a near invalid for something so minor as a kidney stone.
Rachael
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Jul 26, 2008 @ 11:23 pm
I had a stent placed in an emergency situation last week. I was told I would feel discomfort - and that some people have a great deal of pain. The urologist told me that some people can go and play a soccer game afterwards. What an a-hole.

I am in excruciating pain and he won't prescribe anything but Detrol, because I am already in pain treatment through the same University hospital system. Even though the pharmacologist told me, and him that I needed something stronger than Vicodin. I live in pain everyday, and I deal with it. Anything on top of the pain is just too much for me to emotionally and physically handle.

It took everything in me to keep myself from crying in front of him. I waited until they brought my car up and then could barely drive through the tears. I've never been so angry in my life that I had to deal with this man's condescension over my pain and need for proper medication.

Anyone who is going in for a stent should be given whatever they need for pain, as a doctor has no way to judge my pain just because "I look better" than before he put the stone in... Duh, I have been sleeping, laying on my porch and put on a little makeup before my appointment.

Angry is the only way to describe my experience. And I have litho scheduled for this coming Tuesday with him. I may refuse surgery if he will not prescribe pain medication that matched my tolerance level. I would rather wait another week and go to someone else in his practice.
Rachael
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Jul 28, 2008 @ 2:14 pm
I had a stent placed in an emergency situation last week. I was told I would feel discomfort - and that some people have a great deal of pain. The urologist told me that some people can go and play a soccer game afterwards. What an a-hole.

I am in excruciating pain and he won't prescribe anything but Detrol, because I am already in pain treatment through the same University hospital system. Even though the pharmacologist told me, and him that I needed something stronger than Vicodin. I live in pain everyday, and I deal with it. Anything on top of the pain is just too much for me to emotionally and physically handle.

It took everything in me to keep myself from crying in front of him. I waited until they brought my car up and then could barely drive through the tears. I've never been so angry in my life that I had to deal with this man's condescension over my pain and need for proper medication.

Anyone who is going in for a stent should be given whatever they need for pain, as a doctor has no way to judge my pain just because "I look better" than before he put the stone in... Duh, I have been sleeping, laying on my porch and put on a little makeup before my appointment.

Angry is the only way to describe my experience. And I have litho scheduled for this coming Tuesday with him. I may refuse surgery if he will not prescribe pain medication that matched my tolerance level. I would rather wait another week and go to someone else in his practice.
Michelle
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Aug 3, 2008 @ 5:05 am
On the 13 May i was awoken by a searing agonizing pain in my left kidney area, my partner took me to the godpital and they found on ultrasound that i had a 2cm kidney stone that was stuck in the ureter, considering i was 37 weeks pregnant they did not want to do surgery so i was flown to our major hospital and had a stent put in, after on going for urination it felt like i was passing glass, and have felt like going tot he toilet every 10 mins, and that my bladder is always full. Also am getting severe pain and strong ache in the left kidney, when passing urine and it makes me hold my breath until the pain subsides. Is this normal for me to feel like this. Although i am now booked in to have a PCNL operation on my kidney to remove the stone and HOPEFULLY they can remove the stent as long as it hasn't calcified or attached to the ureter. That happens in 5 days time and i cannot wait.
kathy
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Aug 26, 2008 @ 8:20 pm
Wow! I've just read all the entries here. Ditto, Ditto, Ditto!!
Last year they found an 8mm stone on the left and a 14 x 28mm stone on the right. Had 2 lithos done in Jan and one in May. No problems until June, 1st fragment of stone passed, left side, 2nd one followed 3 weeks later. Emergency room visits for both. Love the "cocktails". They wouldn't let me take any home just in case it happened again. Well it did, last week. A stent was put in. Doc said I'd be ready to go to San Deigo on a planned resort vacation after it was done. What a joke! I was in the hopsital for 2 1/2 days. Voiding was uncontrollable at first. Kept the nurses busy, lots of pain, (still lots of pain)sitting still not moving a muscle was great,followed by a continuous (every 4 hours, 24/7) dose of percocet, if you get past the painful bladder spasms and the need to urinate NOW.... RIGHT NOW! ALL THE TIME, and lets not forget the burning at the end of voiding...... I too am a school teacher. walking is a joke, hurts like a large tug of war is going on between the bladder and kidney. Every step I take jars my insides and creates a sharp pain. I feel everyone's frustration AND pain. The removal is painful as well, I was told. Short term sharp pain as it is removed, a few days of aching afterwards. I will be rethinking the stent thing before I allow it to be done again. Surely there is another way. Anyone who can get a Urologist to answer any of these queries, you get the prize! By the way, the people who are having problems with getting pain meds, appropriate pain meds, your Dr. is required and mandated by law to do pain management stuff as part of his patient services. Don't let them treat you otherwise. If you are not happy with the service, don't be afraid to speak up about it.
Sarah
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Sep 2, 2008 @ 3:03 am
I have to have a stent long term as i have a single kidney and my tube is abnormal,i had my first stent under a local via a naphrostomy opening and boy did that hurt,my second was under a general thankully,i have now refused any more OP's under a local..As for pain i have learnt to take regular pain meds plenty of water(no tea coffee or cola as it causes me spasms)and def plenty of rest..Yes it can hurt yes you can bleed and yes you can feel very tired but its so much better than renal faliure...
joal
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Sep 3, 2008 @ 3:15 pm
i commiserate with all of the above comments. i had 5 laser surgeries on my right kidney, with stents, and had only minimal pain, used vidocin, and baclofen. last month i had first surgery on left kidney, and dr put 1 stent in left kidney, and 1 in right kidney. for the first 2 weeks, i had pain that was manageable. but for the last 2 weeks, i am losing it. i take detrol, and vicodin, and ibuprophen, and i am miserable. i have abdominal cramps, and bladder spasms, and the lovely peeing every 2 hours, with burning and urethral spasms. i have full confidence in my dr., but he has never had a stent, so is just a little disbelieving that i am suffering so much. my next surgery is sept. 26, and i hope i can take it for that long. good luck to the rest of u, and keep drinking that water, lol.
Salinas
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Sep 4, 2008 @ 12:00 am
I am so glad that I found this website, I have been desperately searching for someplace that I could find other people that have experienced what I am going to go through tomorrow. I have had numerous UTI's for the past 3 years and finally I had a doctor that thought "Hmm, maybe it is time to see a specialist". Urologist found 2 stones in my right kidney. I am scheduled to have the ESWL tomorrow morning with a stent placement as well. Now that I have read all of the horror stories related to having the stent, I don't know if I want to have the stent placed now. Can you turn down the placement of the stent? I sure as hell am leaning towards the refusal. We shall see how happy the uroligist will be tomorrow. I shall keep the forum updated. Wish me luck!!!!
kim
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Sep 15, 2008 @ 3:03 am
Hi, i am a 21 year old female.
after 8 xrays finally got diagnosed with 4mm kidney stone. had op last week to remove kidney stone. woke up and was told kidney stone alot bigger than thought and couldnt be removed so put in a stent instead. not sure what happens to kidney stone? defenetly worst pain experienced in life so far, far far wose than childbirth and alot worse than a kidney stone.

so now, thanks to doctor, i still have kidney stone, got excruciating pain in right kidney again, cant walk properly thanks to pain down below, very constipated, weeing almost constantly what looks like just blood, had an allergic reaction to pain killers, now got an infection in kidney as well. wake up during the night in tears as the pain killers wear off. cant work as i am a child carer and am in no fit state.

my honest advice is try everything else before a stent. it hurts so so much and i will be making sure they put me to sleep when they remove it and i will never have one again if i can choose. i think having a stent should not be a day operation, you should be monitered for a few days in hospital. the service i recieved from nurses was appaling. originally sent home with no painkillers. almost as soon as i woke up they said good bye and now ive had this infection brewing all weekend.

believe me having a kidney stone is bliss compared to stent... especially a kidney stone and stent.

i feel very sorry for anyone going through this while pregnant and unable to take strong painkillers.

drinking water does help!!!....until you have to urinate!
kim
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Sep 15, 2008 @ 7:07 am
Hi, i am a 21 year old female.
after 8 xrays finally got diagnosed with 4mm kidney stone. had op last week to remove kidney stone. woke up and was told kidney stone alot bigger than thought and couldnt be removed so put in a stent instead. not sure what happens to kidney stone? defenetly worst pain experienced in life so far, far far wose than childbirth and alot worse than a kidney stone.

so now, thanks to doctor, i still have kidney stone, got excruciating pain in right kidney again, cant walk properly thanks to pain down below, very constipated, weeing almost constantly what looks like just blood, had an allergic reaction to pain killers, now got an infection in kidney as well. wake up during the night in tears as the pain killers wear off. cant work as i am a child carer and am in no fit state.

my honest advice is try everything else before a stent. it hurts so so much and i will be making sure they put me to sleep when they remove it and i will never have one again if i can choose. i think having a stent should not be a day operation, you should be monitered for a few days in hospital. the service i recieved from nurses was appaling. originally sent home with no painkillers. almost as soon as i woke up they said good bye and now ive had this infection brewing all weekend.

believe me having a kidney stone is bliss compared to stent... especially a kidney stone and stent.

i feel very sorry for anyone going through this while pregnant and unable to take strong painkillers.

drinking water does help!!!....until you have to urinate!
Jenny
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Sep 16, 2008 @ 10:22 pm
I wish I had found this site a month ago. I am having my stent removed tomorrow. First off I was never told that they would be placing a stent until I was being admitted by the nurse for surgery. Nor was I informed about the post op. I was told I could go back to work after two days...a week later I had to go to work because of important meetings.

This was my 17th surgery I have had in my life and the post-op was the worst by far. I have had 3 C-sections and I have an incredible threshold for pain ( I had an ectopic pregnancy and burst my fallopian tube. It happened in the morning and I didn't agree to go to the hospital until late that night because I thought I was having a bad period) So I am no wimp.

I am very disappointed because I thought this was supposed to cure my constant UTI's. Infact I have had cloudy urine and pain like I have a UTI since the surgery. I am living on the pain pills. I told my husband that I thank God I do not have an addictive personality because I would have to go into rehab. I take at least one hyrdocodone each day if not a few to be able to function without living on the toilet.

The doctor and I are going to have a come to Jesus meeting. I would prefer to live on antibiotic than go through this again. I am looking into alternative medicine (accupunture) because I can't experience this pain any longer.
Craig
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Sep 17, 2008 @ 4:16 pm
I guess I'm not alone! I was out of work for a month in June for a stone that got stuck with a subsequent infection shortly after that. I had 4 ER visits in three days with excrutiating pain, nausea, and vomiting. For the fourth ER visit, I had to wait almost 8 hours before they would see me! By that time, I was losing kidney function and had to go in for emergency surgery to get a stent placed so that the kidney would drain. It's strange that it took eight hours for them to get me in to see a doctor in the ER, but I was in surgery in less than 20 minutes. I was admitted to the hospital for a couple days to make sure the antibiotics were working.

The stent certainly helped relieve some of the pain, but I was surprised at how strong and how frequently the urge to urinate was. I was in the restroom every 15-20 minutes all day, every day.

I'm reading a lot of horror stories about stents, and I certainly hope I'm not in the minority. My stent was uncomfortable but not really all that painful. I was sore from all the work that was being done, but I could manage it with pain pills. In fact, the day I had the stones removed (with the stent left in) I was in the back yard pushing my kids on the swing.

The stent removal was probably the worst for me. It was intense, but at least it didn't take long (< 1 min). I remember sweating profusely through it. I soaked my clothes and the table I was on. I'll bet I walked out five pounds lighter :o)

I think I have been fortunate to have one of the best surgeons in the country for this type of thing. From what I understand, he developed the procedure where they use a laser to break up the stones and remove the smaller pieces manually. Here's the URL to the local news story:
http://wcco.com/health/kidney.stones.Patrick.2.372643.html

At a follow-up appointment, I learned that I have several more stones that need to be removed. I'll be scheduling the surgery for sometime in the next few weeks. I trust the doctor completely, and I am not worried about the stent at all. I'm not looking forward to the stent removal, but I'd take that any day over the possibility of repeating what happened in June.

Anyway, I thought I would present a semi-positive experience with stents so that people reading this know that not every experience is bad.

For those of you that are experiencing the awful pain from kidney stones, infections, stents, etc., my heart goes out to you. I'll just say that Jesus is there with you through the whole thing. Put your trust in him, and he will take care of you.
sweta
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Oct 8, 2008 @ 11:11 am
Hi,
I have a laproscopic procedure done a month ago and since then have a leakage problem. After that had a stent put in on the right ureter as they found a hole in there. After putting the stent I was still leaking. Then then put a naphrostomy tube in and still I am leaking. Right now I have a catheder and the naphrostomy tube and I am still leaking. Drs cant undetstand why? So tomorrow I am going in again with some imaging they want to do and then decide to do a reconstructive surgery. can u please explain as to what are the possibilities of this sort of a problem. All this is beyond my understading all I know is I am going thr hell...... Any input would be great.......
Lucy
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Oct 11, 2008 @ 8:20 pm
Hello all,
First thank you all for your postings. I'm so glad I found this site prior to having a stent put in.

I woke up a few weeks ago with excriciating pain on my left side. First passed it off as gas until the spasms started and I couldn't move. My husband rushed me to the hospital where it was dicovered I had a 3mm stone in my left ureter closest to the kidney. I was sent home with a bunch of pain killers and told to drink lots of water. If the pain wasn't better after a few days to see a Urologist.

A week later I went to see the recommended urologist. After the XRay, I was told that I had a 5mm stone, and it has not moved at all. They recommended Lithroscopy to blast the stone. Two days later I had the procedure.

Over the next few days I passed lots of fragments with pain off and on. The pain meds kept it under control for the most part. Ten days after the procedure, I started experiencing extreme pain again and visited the Urologist (for the follow-up).

After another XRay they said that there was still a large fragment, around 3mm, stuck in the narrowest part of my ureter close to my bladder. Because of the location, they couldn't do Lithroscopy again and suggested a stent instead. I was told it was a simple procedure and they mentioned nothing about pain. The doctor also prescribed Flomax, .4mg to be taken every night. It was said to make the stone passage easier.

Note that I too am no stranger to pain. After 18 surgeries related to a brain tumor and a very large fibrod, I've been on every pain medication known to man and experienced every pain imagineable! The last thing I need is more of it.

As a result of reading this, I'm delaying the stint insertion as indefinitly and hopefully the stone will pass on its own.

Thanks again,

Lucy.
Stephanie
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Oct 17, 2008 @ 9:09 am
I have had problems with kidney stones 4 years now. I am 31 years old and I have Lupus and fibromylagia. I pass kidney stones about every 3 weeks. Last years I passed 33 kidney stones while I was pregnant with my daughter. I have also had 4 Lithotripsy done. I have a pocket of stones in my upper quadrant of my right kidney called a catalytic cyst. The pocket of stones is greater than 10mm. I recently had a PCNL done 2 weeks ago to try to remove the cyst which turned out be unsuccesful. I now have a stent in my kidney and it's 4 in the morning. I can't sleep at night. I am having horrible night sweats and extreme pain and not to mention my urine is still bright red. The Dr. was suppose to review the x-ray with the radiology dept. and I guess he didn't, 2 days of surgery in hopes to feel better! What a joke I should of shot myself in the foot. I traded up one pain for another that is 10 times worse. I have to pee every 20 mintues and it feels like someone is scaping out the inside of my bladder with a knife my pain in my back is so horrible not to mention my lupus made my hair fall out in huge chuncks amd my fibro started acting up at its worse possible state ever. I am so miserable please please if you are reading this do not get the surgery done. I also had a problem with my lungs the shrunk while I had surgery and my eyesight went really crazy for 5 days after the surgery. The dr. also had me sign a piece of paper the 2nd day after surgery as soon as I woke up does anyone know why he would have me do that? Please can someone tell me if it gets any better. I am so scareed I have 2 little babies I have to take care of and I am so miserably in pain. Please Help!
Sarah UK
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Oct 18, 2008 @ 9:09 am
I have had a few stents now and find the longer they leave them in the easier they are but you must drink huge amounts of water as it relieves the pain,I try not to lay on my stented side as it can cause me to bleed also walking long distances does the same.I really think you have to rest when you have them and i mean lie down not sit up.I would dearly love to give the urologists a good kick in the backside as they do not understand the discomfort the stents can cause some people i think part of their training they should be made to undergo a few of their little procedures,lol..
On a whole the stenting is not too bad id rather that any day to renal colic....
Daniela
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Oct 20, 2008 @ 8:20 pm
Glad I found this website. My mum had a stent put in a few weeks ago due to a blocked kidney tube and she has been in pain ever since, They don't know whether the blockage of the tube is caused by cancer or scar tissue from previous radiotherpay she has had. Before she had the stent put in she was feeling fine, only a small amount of discomfort from her kidney which was not being drained properly but now she is in so much pain, she can't even stand up for more than 5 minutes and is bleeding every second day when she urinates. Her urologist is an idiot-won't even listen to her and tells her that the stent is in properly and her pain is probably caused by her cancel "spreading all over the place" when there is no evidence of cancel at all on her kidney. Has handballed her back to her oncologist and said "I'm a urologist. I've done what I'm supposed to do". I'm so angry that we were given virtually no information about the stent and possible pain/side effects that it would cause. Have had to search around on the internet for more info. My mum has been through childbirth 4 times, has endured major surgery, chemo, radiation etc and I have never seen her feel this bad since she's had the stent put in.
kenny taylor
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Oct 23, 2008 @ 2:02 am
i myself have a stent in now and to be very honest they hurt like colic from kidney stones when they come out,i have kidney stones every 3months and the bad news is they say ill have them the rest of my life.when they put my stent in i was under a epidural and that was good but when it comes out it brings flesh/meat with it so good luck for about 3days youll burn fire
george
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Oct 31, 2008 @ 9:21 pm
I currently have a stent in my right ureter due to my second kidney stone. Like the last one, stone that is, I made multiple visits to the hospital emergency dept. On all but one of about 5 emergency visits for both stones one in 2004 and the other this month, I was administered morphine. The first stone was 8mm and this one only 4mm but very painful. Oral pain medicines do nothing for my kidney stone pain. I must have narrow ureters or something.

I had two lithotripsy surgeries for the first one alone and in between the two a ureteral stent. The stone was located near my kidney.

When I went for surgery two days ago for the current stent and the laser type lithotripsy through the cytoscope my doctor discovered that the stone must have dislodged when he drained my bladder before he started the surgery.

I had no pain at all when the first stent was removed but it was moments after the second lithotripsy. I was awake but maybe there was some pain killer given through my IV.

I think ureteral stent insertions should require at least 1 day as an impatient. For the first time it's scary. You don't know if the pain you are having is normal and the bloody urine can make you think something is seriously wrong.

I have a very competent doctor and know I am in good hands so far but there has to be a better way. The pain is so menacing when I urinate. I get very nervous when I have to go. I feel like a little kid again. I have to talk to myself to get throug it. Sometimes if you tense up your abdomen, like when you are mid way through a sit-up,it helps but sometimes it doesn't. I think the more water you have to pee the easier it is.
kris
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Nov 19, 2008 @ 9:09 am
I had a stent a couple of years ago with lithotripsy and it was the worst pain of my life... worse than 2 c-section. I was in so much pain and had so much bleeding my husband took me to the emergency room in the middle of the night to get it removed. At the time, they acted like this was a rare reaction to the stent. Now I'm having lithotripsy again next week and if they do both sides (8 mm in one sided and 4 mm in the other) he says I'll need the stent. Now from reading this, I know my pain wasn't some fluke and there is NO WAY I will let them put the stent in place. I guess I will be stuck with blasting the 8 mm stone and taking my chances with the 4 mm stone.
christine
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Nov 21, 2008 @ 7:19 pm
I sincerely feel for all of you that have posted comments about your ordeal with stents...i just had one put in yesterday and let me tell you, i hurt like Hell has just welcomed itself into my body...called the doctor on call a few minutes ago and told him i have drank like 25 glasses of water today and should be peeing bucket loads but only dribbles come out...have flakey blood in what little i pee and am in agony...my stone was extracted and i wish now i could have passed it but he said it was 8mm and would never pass...What is going on with me? Shouldnt a doctor care enough to say, "come on in and we'll make sure everythings ok with you"? I too am a tolerated of pain, have had brain surgery, c-section, appendectomy and several laproscopys...this stent is the worst thing ive had to deal with..Dr says just double up on your vicodin and take your peridium plus...nothing helps so for those of you who think you may be able to pass your stone or have it lazered off go for it and forget the stent..I cant even play or cuddle my little three year old for the pain...Good luck to all of you..
christine
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Nov 22, 2008 @ 9:09 am
can anyone tell me if the pyridium medicine turned their skin orange? Mine is doing that and the pee is and when i vomit thats orange too...How safe is this medicine? My doctor just says keep taking it...
Joy
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Nov 22, 2008 @ 9:21 pm
I am so relieved to know that my pain is real and that I am not just making it out to be more than it is. I had a stent placed on Tuesdat and it has been the worst pain of my life. They got the stone out but put the stent in to ensure proper drainage through the irritated ureter. OMG-I would have rather waited and passed the stone. Again, the doctors said that would be more painful and the stent would just be minor discomfort. Yeah, and now I am freaking out about the removal process on Monday. I am a teacher and I have been out of work a week. This is crazy. What is the point of a procedure that causes MORE pain than the original diagnosis?
christine
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Nov 24, 2008 @ 9:09 am
im waiting on the nurse to call to see if i can have my stent removed within the next couple of days...i just cant get comfortable and all the vicodin is making me shake and vomit...shouldnt it be our call to have it removed? I would like to enjoy thanksgiving with my family. Ill say a prayer for all of you...
christine
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Nov 25, 2008 @ 12:12 pm
More info: my family doctor gave me phenegrin for nauseau and percocet for the pain...changed my peridium to utira-c which is for the spasmns and im feeling 60% better...its worth a try yall..she said the stent cant be removed because if it was i could have blockage of urine whick would back up into the kidneys and could cause renal failure...guess we all need to be tough and hang in there...good luck and comfort to all of you
christine
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Dec 1, 2008 @ 1:13 pm
Joy, did you have your stent removed? If so is it really awful? Be honest ok cuz im begging them to take mine out and i really want to know what im in for...hope to hear from you...C
carol
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Dec 6, 2008 @ 6:18 pm
Hello all!
Yes I have had many stents and they are unbelievably painful to say the least. I do not do Lithortiposys any more as they left so much dust in my kidneys (taht turned to stones)that I am now FILLED with stones!The pain is very tough but please ALL do not let this stop you as you surely DO NOT want to loose a kidney! Keep in mind THAT THE STENTS WILL BE REMOVED IT'S JUST A MATTER OF TIME! It is much better than loss of a kidney or sepsis. The blood, clots, pain & tiredness taht come with the stents ARE REAL! I guess I am lucky that my Doc's know the pain is unbearable and keep me highly medicated. There is a great site to go to for stone formers it can be found at
www.cystinuria.org
On the left is a Community tab, click on Cystinuria forums, it really is a wonderful site for stone formers. You will find many caring people here including Doctors to help you. I do not have Cystinuria but I can not tell you all how much the people on this site have helped me! A stone is a stone!
My right stent has been in since Nov.11.2008 it will come out next Thursday do not ask me why so long. I just had a left stent removed 6 weeks ago and believe it or not I now have another large stone passing again in the left!!!
I will check back on post ALL hang in there. My thoughts are with you ALL for a better New Year!! God Bless!!

Carol X's 30 Years of Stones!!
carol
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Dec 6, 2008 @ 6:18 pm
P.S. No the removal of the stents is not too bad. I myself have found immediate relief.In all my experiences in 2 days your back to yourself! GOOD LUCK ALL! Carol
Eileen
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Dec 12, 2008 @ 10:22 pm
I'm glad that I found this forum. I had Lithotripsy three days ago for a 16mm kidney stone - my first. I now have a stent to put up with for a week from the time of the Lithotripsy. It is very painful. It feels like a continuous BAD kidney/bladder infection without the infection. I am taking Percocet every 3-4 hours to keep the spasming under control and drinking lots of water. It hurts to void at the end. I can't go to work with this kind of pain. Can't wait to get the stent out. I have a string attached and plan to take 2 percocet 45 mins. before having it removed. I sure hope that the little fragments are passing. If they are, I can't see them or feel anything moving. Best wishes and prayers to all, Eileen
Kip
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Dec 14, 2008 @ 8:08 am
It is nice to hear of other people who has pain with their stents. I too had a large stone and infections, thus first stent. It was painful, but after 10 days, I was able to go to Europe with my daughter's choir. It was a fantastic trip, but I was inconstant pain, managed with vicadin. Drinking lots of fluids helps, but for me it was difficult to keep the fluids up as I was not always sure when I would have toilet fascilites. When I came home, the stone was removed, but another stent was in for a week. This one was less painful, but I still was limited in the amount of activity I could do.
I thought the removal was not bad. I was surprised that I experienced the same pain that I had when the stent was in place for the next two days.
It is five days after stent removal and I still have low grade pain and tiredness. I am curious how long the low grade pain lasts?
Kip
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Dec 14, 2008 @ 8:08 am
Here is a helpful hint on managing pain from the stent .. I found that having very loose clothing helped. It seemed when ever I had pressure from clothing on my abdomin, I would have more pain. I went to Salvation Army and bought some loose fitting clothes to help with pain management.
Chris
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Dec 19, 2008 @ 10:10 am
Hi all,

I feel for everyone going through this. I have had a few bout with stones, but this last one a 4mm in the right kidney had to be removed and a stent put in for a week. It was extremely painful the day they put it in an continued until they took it out. The pain when I voided radiated from the kidney to the bladder...I hated the thought of even using the bathroom and waited as long as possible to pee. Removal wasn't as bad as I thought it would be. But it has been 2 weeks since the removal of the stent and I am still out of work due to being exhausted and if I do to much the pain comes back. I am completely frustrated. Has anyone else every had pain for this long after the removal of the stent?? Hope everyone has a Happy Holiday! And a much better New Year! God be with you all through this difficult time!
Chris
Saunjia
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Dec 26, 2008 @ 11:11 am
Oh my gosh, I'm so glad I found this website. I had a stent inserted four days ago after the doc lasered the stone that was blocking. I've been shocked (and completely unprepared) for the CONSTANT, UNRELENTING pain! I've never had a stent before and had no idea this was coming. The blood in my urine finally stopped, but the entire length of the stent just throbs with pain all day, every day. My kidney spasms here and there, and I can feel the bottom of the stent in my bladder. It pokes me sometimes if I move a certain way. I had no idea what I was in for - I wish I had found this website before the surgery!
Rob
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Dec 30, 2008 @ 12:12 pm
I am going thru this hell now. I had a stone removed and a stent put in. They just took out the stent yesterday. The removal was the worst experience I have ever had. First they squirt some numbing solution up your penis hole. Then they clamp it still. A nurse did this and it was not only painful but kind of awkward. Also that shit burns before it numbs. Then the Dr. comes in with the Cystoscope. This thing looks like a manually operated plumbing snake. Well he shoves this wire up your penis and snakes it past your prostate, this is very painful no matter what anyone says. Next he goes into the bladder looks around with a camera. Finally he grabs the stent and reels it in and out of your penis. Horrible.

When that got pulled out I screamed this really inhuman high pitched yell. I am sure the lobby heard it.

Now its out but the pain goes on just as bad as before the stent went in. Relaxing in a warm bath with pain meds helps. Also I havent had a decent bowel movement since i got this stone agony over a week ago. Today I tried to go and strained to hard,what a mistake that was. I was in agony for over an hour from just trying to take a dump. So here I am in bed typing this.


Rob
Dave
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Jan 2, 2009 @ 12:12 pm
I too wish to share my story. On Oct. 30th I had surgery for a Cyst larger then my Kidney. My team of wonderful doctors removed the cyst and had to take a part of the kidney with it. Fortunately there was no cancer. My recovery was about 4 weeks.

Following a routine visit to my PCP at the end of 5 weeks following surgery, he became concerned because I had pressure near the surgery site and it was warm to the touch. It didn't really hurt ... it was uncomfortable. He consulted my urologist and they got me in for a CAT Scan. They found I had sprung a leak in my kidney (a Urinoma). My Urologist admitted me to the hospital for an overnight stay (now at the end of 6 weeks following surgery) and inserted a stent. The first few days after the stent placement, I seemed pretty good. I used the pain meds cautiously and only mildly suffered.

I was scheduled to go on a Christmas trip which my Doctor said would be OK provided I continued my care. During the trip I started experiencing the terrible urges to urinate and burning upon completion. The only thing that would take the edge off was my pain meds (Oxycodone). I had a one week prescription that I stretched the use to three weeks. I even tried taking Advil and Tylonel to ease the urge. I decided the best way to get through it is to gut it out. I did call my Doctor upon my return on Monday and he prescribed Vesicare to relax the bladder. It hasn't helped much. Every time I stand up, I have to go. When I sit down I feel the darn thing and have to hold my breath.

I am now two months after my surgery. I am getting a bit down over it all. I feel like I am only partially functional at work (and sometimes not at all). I had a Cat Scan this morning, but won't get the results till next Thursday. Hopefully the stent will be removed then. I am afraid to ask for more pain meds. My doctors are wonderful and I am sure they would give them to me ... but I am afraid of becoming addicted. Oh well ... this has given me a good reason to get a lot of reading in. It is about the only thing I can do without having to go!

Best wishes to all. Just look at this as a character builder.
Eileen
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Jan 4, 2009 @ 4:16 pm
After my Lithotripsy for a 16mm kidney stone on December 9th, I was told that I would only have to have a stent in for 7 to 10 days. I lived on Percocet during that time and it makes me feel ill just to think of the pain I went through. I went back to the doc to have it removed finally, but an x-ray revealed that I still had a lot of dust and fragments still in the kidney. The doc wanted to have me leave the stent in for 2 more weeks! I was scheduled to have incisional hernia repair surgery on December 22nd, which I had. But 2 days before that surgery, I accidentally got the string that hung out of my urethra from the stent caught in my clothing while dressing and it pulled the stent part way down my urethra. Urine started dripping uncontrollably. I called my Urologist and he said to pull it on out. It wasn't that bad at all after the initial incident of it jerking down into the urethra. Not fun! But I was so glad that it was gone. It took 3-4 days for my bladder and urethra to feel normal. I am recovering from the hernia surgery and in a couple of weeks will go back to see what's still left in the kidney. I pray that whatever was there is gone. I can't tolerate the thought of another stent! No fragments from the lithotripsy have been noticed passing and the kidney doesn't hurt any more. Sometimes it feels as if the kidney spasms. I don't know what's up with that. I will try to update later. God bless all. Prayer and Percocet helps!
Deb
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Jan 4, 2009 @ 11:23 pm
I had my stent removed Friday after having a 7mm stone which was lodged in my ureter lasered. The bladder/urethral spasms are intense...worse than the pain of any of my earlier stones! I was told only to take 800 mgs of ibuprophen if I felt a spasm coming on. No explanation that the spasm would last a while and that during the spasm I would feel the urgent need to urinate with little coming out...and what came out would hurt! OMG! So, the night before I'm due to return to work, I'm sitting here (at 12:47am) waiting for the spasm to pass so I can sleep! You can believe that I'm calling my doc in the morning to get something to prevent the spasms! BTW, I didn't have any problems with the stent except that I did have blood in my urine the whole time.
paige
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Jan 8, 2009 @ 7:19 pm
About a month ago, i had a hysterectomy due to cancer located only in one area of my uterus. 3 days later, my husband rushed me back to the same hospital where it was found that because of the surgery, i developed a blockage in the tube that runs from the bladder to the kidney. i was sweating profusely and chilling all at the same time. i spent 3 days in the hospital, during which time a local urologist put a stint inside that tube. i immediately felt better, but had this constant, ungodly urge to go to the bathroom. blood was present in my urine, but i was told that this was typical and would eventally go away. the stint was in place for 3 hellacious weeks. looking back i have no idea how i got through it with the pain i was in. i had to ask for pain medicine and was prescribed loratab, microdantin and visacare. they all helped, but did not alleviate the pain entirely. 2 days ago, the same urologist removed the stint and i felt a huge relief. what blew my mind was the length of the stint, it looked like a 1 1/2 foot long tiny lasso. i watched the whole procedure on a small tv screen. the things you learn when you dont even want to know about them. my urologist has set another date for me to see him in 6 weeks to do a dye test to determine if i need more care. i really like this website because i dont feel so all alone with my diagnosis. they said i had hydronephrosis.
lyla
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Jan 11, 2009 @ 9:21 pm
Sweta, how did your reconstructive surgery go? I had a ureteral stent put in 14 months ago after expereincing pain on my right flank. The reason was that the Right ureter had scar tissue from getting nicked in a surgery performed 4 months prior. I thank God that I did not expereince the pain many here have shared. Now 14 months later, I ended up in the emergency again with the same kind of pain in my right flank. I knew what it was. They tried to insert a stent from below, but the scar tissue was so tight they couldn't get through. The next day they did a nephrostomy and I am currently walking around with a catheter bag hanging out of my back. The doctor said he wants to leave the nephrostomy tube in for 12 days to reduce the swelling and he will then try to insert a stent from above (through kidney). He said this is not a permanent solution however. I think he will suggest reconstruction of the ureter. My question to you is, was your surgery fully invasive or did they do it laproscopically or some other way?
Beth
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Jan 21, 2009 @ 10:22 pm
I was so glad to find this site. I had a stent put in two days ago and except for the post op pain meds the doc din't give me anything. I felt like I was some kind of wimp because the pain is unbearable at times. It is definately different than the kidney stone, I am not throwing up anymore, but I'm not sure I would call this better. If I am sitting it is manageable but when I stand I feel like I am having labor contractions and when I urinate I feel like my insides are falling out. Thanks to this site I feel much better about calling my doc tomorrow and demanding something to take so I can have some kind of relief.
sarah UK
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Jan 24, 2009 @ 10:10 am
Im now on my 5th stent and this one has hurt like hell,i ended up in hospital on bed rest as the bleeding is so so bad,ugh..Im due to get this one out in April but under a local which im dreading as ive always been asleep,How bad is it when you are awake ??? Hoping not as bad as the naphrostomy or stent via the kidney :O( as im such a big baby,lol..Most people have stones here but the cause of my stricture is a mystery so looks like reconstruction in the summer,how has anybody fared with this ????
Don
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Jan 30, 2009 @ 5:17 pm
I had a kidney stone removed 4 days ago and a stent inserted while under general anesthesia. I have been in various levels of pain or discomfort since, until it was removed today. While it was in, I was urinating every ten minutes, but producing only a few tablespoons at a time, and my bladder was constantly full. I also had to make a few emergency sprints to the bathroom. At the end of each urination my kidney felt like it was being squeezed in a vice and it took me a minute to relax and catch my breath. I asked the doctor to take the stent out a few days earlier than he planned and he agreed. The actual removal was no more painful than any of my bathroom trips over the previous few days, and I left his office feeling like a new man, only slightly puzzled about why he had asked if I still had pain pills as I left his office. Ten minutes later I was suffering what felt like another kidney stone "attack" and struggled to drive home and take one of those pills. That was about two hours ago. I passed a small blood clot just about the time the medicine kicked in good, and I'm wondering if that was the "stone" that had caused so much pain or if it's going to hit me again in a couple of hours. Either way, it's better than the stent, those things should be outlawed.
John
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Feb 2, 2009 @ 4:16 pm
The stone (6mm) was bad. Flew from Fiji (no urologist in country) to Australia and had it removed by laser. (It was stuck halfway down in ureter and lithotripsy was not an option.) The doc put in a stent (last Thursday). Pain, but manageable (barely - with lots of codeine). I asked doc to remove stent as soon as he could so I could travel back home to Fiji. He did it in office on Monday. Not too much discomfort. He said urgency to pee would settle down quickly ("I promise."). About 2-3 hours later the agony set in. Worse than the stone. MUCH worse. Made it thru 1st episode (about 2 hours), short respite, then 2nd episode. Nauseous from pain. MUCH worse than stone. Then it eased a bit. When the 3rd episode began I quickly went to ER and got morphine. The ER doc asked for a urine sample and it gushed out bright red, with clots at the end. Since then no reply from doc but pain is bearable for now (with 60mg codeine) and urine only pinkish. Wish I knew what was next. NO warning this could happen and no pain meds. This sucks. Reading the comments above I can see I am not alone. Why cannot these MFs warn or provide relief??? I guess only those of us who have been thru this know just how agonizing it is. If the ER doc had not provided morphine my next move was to jump in front of a bus. Getting a stent removed? GET A LOT OF PAIN MEDS LINED UP FIRST!
Justin
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Feb 2, 2009 @ 8:20 pm
I had a 4mm stone in my right ureter for 7+ months, finally decided to go through with the ureterscopy and have it removed. I woke up in the recovery room with no initial pain, just some discomfort from the strings. After about 15 minutes the pain came and was just as bad as my first trip to the ER. I had 3 doses of morphine within about 10 minutes and a percocet. That lasted all of about 30 minutes and was in tears again from the pain. I had a dose of demerol and another dose of morphine and a pyridium. The pain gradually subsided somewhat but then I started getting sick because of all the drugs. I got to go home after about an hour and a half in recovery and as soon as we pulled into the garage I opened the door and puked. Made it to the bedroom then had to puke again. Had some crackers and puked it up again. I had to have promethazine called in for the nausea and that helped me sleep. Drinking 3-4 liters of water a day definitely helped.. my worst was at night when i couldn't drink as often being asleep.. my trips to the bathroom were about every hour and a half. There was considerable pain during urination and felt like my stone was still there. Only a little would come out and was pretty bloody. I just had my stent removed (4 days after surgery) and after reading this was expecting to be in excruciating pain. It was pretty intense but wasn't as bad as the pain after the surgery. I had the stent with the strings attached so there was no cystoscopy necessary. The nurse practicioner told me to hold my breath and she started pulling the strings... about a 5-6 on the pain scale but it was a very weird sensation that I dont care to ever feel again. Its been about 2 hours now and there's very little pain but still some blood in my urine.

So my advice is to try all options to pass the stone if its small enough. Drink lots of lemonade and try the lemon juice/olive oil cocktail and let me know if it works.. If you have to have it surgically removed plan for at least 4-5 days recovery before going back to work. Drink lots of water, like at least 3-4 liters a day, and have someone to take care of you because you're not going to want to do anything. Ask your doctor to use stents that can be pulled out with strings because from what I hear the cystoscopy is a lot more painful. Good luck.
tru
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Feb 4, 2009 @ 6:06 am
I would like to know if anyone has every had your kidney disconnected from there bladder and formed a urinoma , if so does anyone know what the fluids or toxins from the kidney free flowing into the body does to the other organs of the body? is there damage caused from the fluids? over a 30 day period
James
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Feb 6, 2009 @ 2:14 pm
I've had 9 kidney stones on my short 23 years of life. 4 of which had to be surgically removed. 3 of those surgeries resulted in a stent being placed for 1-2 weeks. I'm not trying to minimize anybody's situation here, but come on. It's really not that bad. I admit, the first day of the stent sucks, but it's nothing you cant live with. My last operation was on 1/23, and I've had a stent since 1/27. I'm scheduled to have a percutaneous nephrolithotomy procedure on 2/20 for a staghorn calculus stone (21mm) in the right kidney, and a stent will once again be required. The worst thing about having a stent is you cannot really be sexually active. I've read a lot of posts from some people who passed clots. This is because you're stent is being removed too soon. I had my stent removed too soon once, and was back in the ER an hour later until I passed the clots. Bottom line is this, the stent is nowhere near as bad as you all say it is. Also, getting it removed (as long as you have a string) is a piece of cake. You dont need to load up on pain meds, it's a weird sensation, but very releiving once it's complete. Good luck to you all.
Judy
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Feb 6, 2009 @ 3:15 pm
James- I am glad to hear that you had little pain with your stent. But don't minimize those of us who have had horrible pain. My mom never had any pain either and couldn't understand how I had so much. It was the worse pain I had ever had. I have had 3 children and multiple kidney stones, but the stent was the worse. When the Dr told me I could go back to work the next day I was excited until I got up that morning. There was no way I was going anywhere except to the restroom all day and night.... the pain was only bearable with meds. I am happy for anyone that didn't have any pain, but please don't minimize those that had it. We are all different and all experience different pain....hope all is going well with you.
Nikki
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Feb 12, 2009 @ 6:18 pm
I have been dealing with kidney stones for the past 2 months. I'm only 17 and it was really been a challenge for me. I have been in and out of the hospital and I've missed way too much school. They went in on January 13 and removed 4 stones. They ended up putting in a stent and told me that I would be fine to go home in a few hours and that I could be at school tomorrow, but that was a joke. I was in so much pain I could hardly do anything and I was falling way behind in all my classes. I finally had my stent removed which was not a good experience and I just thought that it would all be over. After the stent was out they took another CAT scan and found 3 more stones. I have never been through any pain like this in my life. This website does help because you know other people actually know how you feel. Good luck to everyone.
laura
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Feb 22, 2009 @ 6:06 am
I have a 15mm stone in my left kidney,i have had my stent in for 10 weeks now.I have only had 1 lot of litho so far which was 6 weeks ago.I had to go and see my urologist and beg him to take my stent out ,he said he would try laser treatment up through my stent and he would get me in asap.That was two weeks ago and i haven,t heard from anyone since.I have been on antibiotics for pretty much the whole time my stent as been in and also two different strong painkillers but nothing makes any difference.The pain is unbearable ,even walking a short distance makes me need the toilet.If i had known just how bad and how much it would affect my life i would never have had it done.it does help reading about everyone else,s experience of this nightmare.Good luck to everyone going through this.
laura
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Feb 22, 2009 @ 6:06 am
I have a 15mm stone in my left kidney,i have had my stent in for 10 weeks now.I have only had 1 lot of litho so far which was 6 weeks ago.I had to go and see my urologist and beg him to take my stent out ,he said he would try laser treatment up through my stent and he would get me in asap.That was two weeks ago and i haven,t heard from anyone since.I have been on antibiotics for pretty much the whole time my stent as been in and also two different strong painkillers but nothing makes any difference.The pain is unbearable ,even walking a short distance makes me need the toilet.If i had known just how bad and how much it would affect my life i would never have had it done.it does help reading about everyone else,s experience of this nightmare.Good luck to everyone going through this.
Linda
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Feb 25, 2009 @ 12:00 am
On December 15th I had a stent put in due to a Kidney Stone. It has been in for 11 weeks and what a nightmare! I can not handle the pain medications the Dr has prescribed. Hydocodone makes me throw up.So I have been taking Ibuprophen 800mg, AZO and Detrol LA. I have never known such agonizing pain in my life. After 11 weeks the Dr said It is finally coming out on 3/2/09. If my kidney should have any damage or my bladder I plan to file a lawsuit. My whole body is tired and I have to endure more pain with the removal now.I truly know what everyone is going through.
Valerie
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Mar 2, 2009 @ 1:01 am
I feel for all of you. I too have had a stent placed in my kidney leading to my bladder. I don't have a kidney stone, I have a very large cyst that has blocked off the top portion of my right kidney. I can't believe the amount of pain I experience on a daily basis. I have a very high tolerance for pain, but this is absolutely insane. The pain is so bad I am taking vicodin around the clock non-stop. The medication doesn't even relieve the pain, it only takes the edge off. Just enough so I don't lose 100% of my mind. I had the stent put in on 2/16/09, and I have been miserable since then. My doctor told me the pain is not bad for most people, but some people say the pain is worst than their kidney stones. I guess he was at least honest. I can't believe I am still bleeding and cramping 2 weeks post surgery. This is a nightmare. I have an appointment Thursday 3/5/09, to discuss removal of the stent and to plan my surgery to drain this cyst. I don't think it can get any worse than this. I am truly looking forward to my surgery. I hope you all get better soon. Best wishes!!
Lynn
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Mar 5, 2009 @ 10:22 pm
Oh how I wish I had found this site a couple of weeks ago! I just had lithotripsy 2 weeks ago and they put 2 stents in and I have gone to hell and back! Pain was unreal!!! Went to emerge once and then begged the nurse to get me in to see doctor--he proceded to tell me pain was from being constipated--so I did everything on earth to rectify that problem with no luck in the pain department.
I called doctor again and begged nurse to have doctor take out stents. Well my wish was granted today--and let me tell you it was a blessing after the fact, as the procedure was terrible--no local was given(even though I was under the impression one was to be given).
Well the relief lasted about 2 hours and now I am back to the same old same old. The major pain is gone but the spasms are killing me. Got lots of good info from this site in regards to meds and I know there is someone worse off then me, not that makes me feel better. I wish you all the best, and I hope I never have to go through this again.
Thank God I am not working at this time as I could never had survived going to work. Changing diet to see if it makes a difference in the stone situation as it seems I get one every 2 years--usually in the winter after not drinking enough all summer it seems. Take care everyone and thanks for letting me vent!
Sue
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Mar 6, 2009 @ 11:23 pm
I passed asmall kidney stone several years ago on my own and it was very painful. At that time after tests were done I was told there was another about 5mm in the same kidney. This past Sunday 3/1/09 I started havinfg excruciating pain and immediately knew that it was my stone. After a couple of hours the pain subsided and I thought I must have passed it, but when I woke up Monday morning I started having the pain again, but worse. I turned as white as a ghost with cold sweats, vomiting and ended up going to the ER. I was told that it was now about 9mm and would have to be removed by Lithotripsy. I went to the hospital yesterday, Thursday 3-5-09, and they ended up doing a ureteroscopy and lasered it then put a stent in until this coming Wednesday I will get it out. I have to say that I should never have come into this website and read all of these horro stories. I have felt better since they did this and have an occassional spasm or a sensation of burning at the end of urination, but compared to the terrible pain of the stone it isn't toobad. I know pain as well because I had everything broken from my pelvis down pretty much in a severe car accident 2 years ago and have delivered 2 babies naturally and already passed one stone, but now I am terrified to have this removed because of all these horror stories. I feel terrible for all that you have gone through, but now I will be dreading the day they remove this. I NEVER shpuld have looked at this website.
Sue
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Mar 6, 2009 @ 11:23 pm
I passed asmall kidney stone several years ago on my own and it was very painful. At that time after tests were done I was told there was another about 5mm in the same kidney. This past Sunday 3/1/09 I started havinfg excruciating pain and immediately knew that it was my stone. After a couple of hours the pain subsided and I thought I must have passed it, but when I woke up Monday morning I started having the pain again, but worse. I turned as white as a ghost with cold sweats, vomiting and ended up going to the ER. I was told that it was now about 9mm and would have to be removed by Lithotripsy. I went to the hospital yesterday, Thursday 3-5-09, and they ended up doing a ureteroscopy and lasered it then put a stent in until this coming Wednesday I will get it out. I have to say that I should never have come into this website and read all of these horro stories. I have felt better since they did this and have an occassional spasm or a sensation of burning at the end of urination, but compared to the terrible pain of the stone it isn't toobad. I know pain as well because I had everything broken from my pelvis down pretty much in a severe car accident 2 years ago and have delivered 2 babies naturally and already passed one stone, but now I am terrified to have this removed because of all these horror stories. I feel terrible for all that you have gone through, but now I will be dreading the day they remove this. I NEVER shpuld have looked at this website.
Linda
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Mar 11, 2009 @ 4:04 am
THEY REMOVED MY STENT LAST MONDAY! O GOD WHAT A RELIEF! IT FEELS SO GOOD NOT TO HAVE THAT PAIN ANYMORE! It is life altering! That stent is just a bad nightmare now. MY STONE IS TOTALLY GONE! Just to let you know I had blood in my urine for a couple of days after the procedure but it cleared up. I finally slept 9 hours without having to get up all through the night to urinate. So far all is going well. I plan to drink gallons of Lemon water....I do not want to go through that again! My Dr. gave me a list of things to watch out for. Good luck to all who are still going through it.
Betsy
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Mar 11, 2009 @ 2:14 pm
As a regular former of stones 15mm and up for over 20 years, I've found that stents are by far the most painful thing to endure. If there is a valid reason to place them then fine, but if not the doctor should leave well enough alone. I've already proven that I'm able to pass stone bits measuring 6-7mm on my own, yet the doctors now insist that a stent be placed every time they do lithotripsy whereas before I never had to deal with a stent. Hogwash! It's my opinion that an unnecessarily placed stent does more harm than good. Lord knows they hurt like sheer hell once the anesthesia wears off and any doctor that says they won't is a bald-faced liar. BTW - just had a stent placed despite strong objections this past Monday and afterward the surgeon told my husband I could remove it myself on Friday. Huh? I've always had to go into the office to have the doctor remove them. So I'm a little clueless. It's obvious you have to pull the strings; but should you lie down or sit on the toilet, and should you pull gently or just give the darn string a quick yank and be done with it. It's going to hurt no matter what, but I'd like to know which method is going to cause the least damage to deal with afterward. Thanks.
Ernie
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Mar 12, 2009 @ 4:16 pm
I had a stent placed in me following a blockage to my uterer caused by a stone which was 2cm, yes that's 2cm ! They used a the microscopic pneumatic drill to blast the stone to tiny fragments. I am due to have the stent removed next week and I am so looking forward to it. Passing urine is excrutiatingly painful. I had passed a lot of blood at the start, but it subsided. However a few days later, the bleeding came back, but only lightly. Anyone else experience this ? Based on your experiences, does the stent removal actually mean relief ? Will passing urine become painless again ? This whole experience has been one I will never forget and hopefully will never experience again
CJ
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Mar 17, 2009 @ 1:13 pm
My doctor also downplayed the amount of "discomfort" from the ureteral stent. The first 4 days I had pain that vicodin and prosed (anti-spasmodic) didn't relieve. Each day after that got better, though. At one week, it wasn't comfortable, but it was tolerable and I could function again. My research through medical journal articles showed that 80-90% of patients have severe discomfort at first. Patients could tolerate it better if they were told what to expect upfront.
Cassaundra
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Mar 22, 2009 @ 11:23 pm
Thank you all for all of your comments. I recently went to have outpatient surgery just to have a ureteroscopy. I didn't find out that a stent was inserted until I was coming out from the anesthesia. I was so upset because I went into the operating room feeling fine no pain from kidneys and I come out in unbelievable pain and the extreme urgency to urinate. I was told that my right ureter was almost completely blocked probably from scar tissue from previous surgeries. This by far is the worst pain I have felt because there isn't a moment that the pain isn't there. At least with c-sections you know that each day the pain lessens. I am supposed to have the stent removed in three days. I am so nervous I can hardly stand it. Is the removal truly unbearable is it tolerable? I really need to know because I can usually handle pain but I guess it is the idea of the removal that petrifies me. I hope everyone else is doing well and again thank you for sharing your experiences, Cassaundra
Becky
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Mar 24, 2009 @ 5:17 pm
I too have extreme pain from a 4mm kidney stone that was obstructing my urine flow. I had been sent to emergency surgery and a stent placed. The pain/bleeding afterwards was quite horrible. But, without the stend I may not be here anymore. I had an infection that quickly spread into my bloodstream. This is something that you don't want to happen. I am scheduled for Lipotripsy and then hopefully a week or two later removal of the stent. The stent is quite important. It does hurt,pinch,and pull. It is mentally wearing. But, if it saved you from a blood infection it is a good thing. Without them you could have had swelling and blockage from the stone and then could lead to severe infection/death. It happens quickly. The doctors only have so many resources to help us. The design of the stent needs to be improved. My prayers to you all - especially expecting mothers.
Be sure to let your doctors know of your experience. They need this informatin to improve this proceedure in the future.
rick
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Mar 25, 2009 @ 8:20 pm
This is a great website. I have had a stent for less than 24 hours. In another 24 hours, I will have my first lipotripsy treatment ever. Not looking forward to it. I read a lot of technical research and the thought is that the newer machines are more harmful than the ones they built in 1980 because they are too strong and they harm the kidney tissue, cause hypertension later on, renal failure, diabetes, and most importantly, blast the fragments into the tissue to act as seeds so that more stones will happen in the future. This sounds like a class action suit waiting to happen against lipotripsy machines that generate more business for this 20 billion dollar industry. Hopefully, we can get the machines to be less powerful (less than 2 KW, use less dose (fewer than 2,000 blasts), and take longer times like they did in the good old days. BTW, the success rate of pulverizing these rocks is the same with the old machines as with the new machines. They say that AIG was too big to fail, now they should look at this corrupt urology medical industry and right size it before it creates more harm.

Also, learned here some useful techniques to deal with stent pain such as wearing loose clothing, drinking plenty of water, tightening your stomach when voiding, not lying down on your stent side, stool softener, etc. And the pain should moderate with time.... I hope.

This is a character building experience. Good luck.
Nona Schaupp
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Mar 27, 2009 @ 6:06 am
There must be a lot of people out there that this is not such a big deal. I'm a 59 yr. old female who has had 4 babies and passed at least a dozen stones, the most recent of which were 7mm. They discovered in the ER that I also had an 8mm stone that really should be removed. I am out of state to care for my 86yr. old mother and her situation is one that I really cannot afford am emergency. Since I was told this would be "quick, out patient procedure, safe [unless I happen to be one of the less than 4% who have complications] a little discomfort, minimally invasive and quick recovery", this seemed to be the safest choice. To be on the safe side I flew my son in for the procedure for 3 days. How I wish I had seen this sight before making THAT call. Because I went home an hour after surgery and still under anesthesia I thought it was over. I could only think, in light of what I was told, that something had gone horribly wrong that night and almost went to ER but waited 'til morning. Next day bearable so I hung in there. Night before last I had the night from below. I was already so tired from no sleep the night before that I couldn't wait to go to bed. As soon as I fell asleep this excruciating #8 level pain began. The only reason I didn't take the Vicadin [sp] is that it severely nausiates me and that was the last thing I wanted to add to my missery. My son took me to urology first thing yesterday. The did an ultr sound and xrays and said everything was "just fine". I had eleveted to a full blown #10 pain and assured them all was NOT fine. They gave me a different pain med and sent me home. Now I not only had the unbelievable pain but horrible anxiety that I was going to explode, die or kill myself and no one knew the cause. I've just always nievely thought that severe pain is a red flag to SOMETHING. But being told it was "not the stent" and "we don't know" and "never had this problem before" REALLY worried me. I downed the pain meds which realy did help but was still terribly worried something horrible was just being masked. My son, searching for some explaination happened upon this site,[thank heavens], and I had my answer. I will have this stent for 18 days because they accidentally made a small tear in the ureter. At least I know I can medicate to survive and that it is in fact all stent related. Why in the world don't they level with people. In case this particular clinic really has not heard of this happening, I am planning to print this entire discussion so they can better inform people. My husband is flying down today to help where my son left off until the "devil's claw" is out and I have recovered. I hope there are some researchers out there trying to come up with a better plan for dealing with stones.
All the best through your experience. Nona
BLL
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Mar 27, 2009 @ 12:12 pm
A year ago I was diagnosed with an 8mm stone in my left kidney. Doctor and I decided to leave it alone, as it was not causing any issues. Last weekend, it dropped into my upper ureter. I went to the ER in extreme pain. Later that evening, my doctor suggested a stent, and I agreed. I had no information to compare it to, and I knew I would need lithotripsy to break up the stone since it would not be able to pass on it's own. The stent pain is horrible, but only when I have to urinate. Yes, there is blood. Yes, I feel like I need to go to the bathroom more than normal. Yes, it is uncomfortable to walk too much. My employer is amazing, giving me as much time as I need to get over this. I only worked two half days this week, the rest of the time was spent on meds and heating pads. While I was at work, I sat most of the time (I work in a school with pre-k children). Anyway, yesterday I had the lithotripsy done. My kidney is a bit sore, and it still hurts terribly to urinate (the kidney feels like it is being squeezed tight). I go back in to see the doctor April 8. I am a little scared that the dust/fragments will not all be gone, and I am nervous that if there are remains, they could turn into stones in the future. Water, water, water. Hopefully, everything will be clear and the stent will be removed. Not looking forward to that. I know that this whole process stinks, but each day I am closer to being done with this experience. I know that I will be back to normal eventually. Yep, the stent is horrible. But it kept my kidney from backing up, and for that I am thankful. I will continue to try to keep this all in perspective...An uncomfortable stent/stone for a period of time, or a kidney infection that could have lead to renal failure or even death. I am not willing to leave my family over a peice of tubing! Good luck to us all. None of us is alone (although when you are sitting on the toilet screaming into a towel, it sort of feels like it for a moment!). I will let you all know about the stent removal in April. I am anticipating complete recovery shortly thereafter!
laura
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Mar 27, 2009 @ 12:12 pm
I wrote on here on 22 feb telling of my experience.I'm now 14 weeks with the stent,2 weeks ago after getting really upset in my G P's office i was given voltarol suppositories which have helped a lot with the pain ,my life is about 70% back to normal.On 29th march i am due to go in for laser cystoscopy and am told i will be in hospital for 2days(this is after already having 2 lots of lithotripsy)and will have my stent replaced for a short term stent(not sure how long short term means ??)hopefully this will all be over soon .If anyone had told me on 18th dec that 14 weeks later i would still be suffering i probably wouldn't have believed them.I asked my G P why if i was in this much pain for any other reason, something would have been done sooner but when you have a stent in it seems like there's nothing they will do and you just have to put up with it.Good luck again to everyone - maybe soon this will all just be a distant nightmare
Kevin
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Apr 15, 2009 @ 2:14 pm
I have had a stent inserted yesterday after 6 weeks of severe pain with a stone lodged in my left ureter. I was sent home with no pain meds and told I would be back to work next day, what a load of crap!! Have a constant urge to pee and when I do its like peeing glass also there is the blood, will this urge subside and how long before it does?
Murthy
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Apr 17, 2009 @ 8:08 am
I have been recommended for right ureteroscopy. The stone was initially 10 mm in the upper right ureter. It is now shown as 6 mm in the USG and it is now at the VUJ, junction of the ureter and bladder. It is not moving out since last 2 to 3 weeks. I am not sure why. I hope it moves out. Doctor suggested for ureteroscopy, but I want it done only on local anesthetic and not general and not spinal. I dont know any clinics here in India which do it only on local anesthetic. Please suggest.
Amber
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Apr 17, 2009 @ 3:15 pm
im 18 years old, and had a stent put in place on april 14th, 2009. i also have panic disorder, so im always scared that something might go wrong with the stent. can someone please convince me that i'll be okay? the pain isnt that bad, the urologist (spelling?) prescribed me percocets for the pain, and i cant think of the other pills name but he prescribed it to relax my bladder. it turns my urine blue/green. i still havent passed the stone yet and im scared that something will go wrong with the stent, any advice to make me feel better? thanks in advance.
FloridaRN
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Apr 19, 2009 @ 3:03 am
I had a stent placed 10 days ago now for a 12mm stone. The Dr never told me about the pain that would follow this beast! I would rather deal with the pain from the stone! It was 9 days before the bleeding began to subside and the pain is ridiculous. I was given narcotic pain meds and the Detrol-- which by the way did not help the spasms. The pain meds helped except that I'M A NURSE-- I cant take narcotics at work! The pain and spasms in my bladder are terrible,I feel it when I walk or bend over, sitting down is worse than post partum pain and I feel like I have the worst UTI of my life and the Dr. isnt even sure that he got the stone with litho. I have 3 more weeks until my follow CT just to see if the litho worked. Per my MD, I may be looking at another 8-12 weeks with this miserable thing in. Pray for me-- I need it!
Ken
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Apr 20, 2009 @ 8:08 am
I had a stent in 2004-worst experience ever. I am going in today for a lodged 5mm stone- and I might need another one. Please pray for me that I won't need the stent- yes, it may save the kidney but talk about torture...
NursingStudent
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Apr 20, 2009 @ 6:18 pm
Wow. I found this website and I am caring for a patient tomorrow who had a stent inserted and then he ended up having urosepsis (severe infection of the kidney and urinary tract). I hope I can put him at ease in some way. I am so sorry everyone here is having such a bad experience. To make things worse he only has one kidney because he lost the other one to cancer 2 years ago. :-( I am nervous for tomorrow.
Kim
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Apr 24, 2009 @ 6:18 pm
This is my 6th Kidney stone. Mom, Dad, Sister, Niece, Nephew, Cousin(s) all have had a history - including myself - so let's just say hereditary is the key... Wow the pain of this last stone was terrible - I had bilateral stones - one was in the kidney and giving me the pain - in March that one was I had liptripsy on...2 months later the larger one that we thought would never leave the kidney decided to take a trip down my tubes and imebed itself...the pain was worse that my 2 completely natural childbirths. Long story short - I now have a 2nd stent placed after the lasering of the bugger (stone) I am stone free but stent pained...I have the stent removed on Monday 3 days away - does anyone recommend taking a large does of vicodin prior to removal ... or a xanax...I have such anxiety over the removal..This last stone has made me swear off Starbucks...and make water my beverage of choice. Thank you so much for this forum...now I don't feel like such a baby - I have never in the 5 prior episodes of stones have I had stents, pain, blood - the blood is unbelievable. Thanks again!!!
Jeff
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Apr 29, 2009 @ 11:11 am
This is my 2nd kidney stone. There were 2 bouts of severe pain about a month ago that was aleviated within a few hours by drinking copious amounts of water each time. The third bout lasted about 12 hours. The following day I had a CT that showed a 7mm stone in the kidney at the entrance to the bladder. My doctor (urologist) told me that the stone moved, probably as a result of all of the water. He said that there is no pain associated with stones unless there is blockage. I was leaving on a trip in 3 days and he said that I shouldn't go unless I had it removed first. I had it removed the next day while under general anesthesia. He ordered a laser to have in the operating room to break up the stone first. I was home within a few hours. I still have the stent in today after a week and my partner (a registered nurse) will remove it today at home. I have had little trouble during the time after surgery (10 days) other than some cramping when relieving and minor irritation due to the string. Very little pain killer usage and Phenazopyridine x3 daily as an urinary track analgesic (orange urine). It did not ruin my out of state trip. I am going to medicate prior to the removal of the stent today with Hyomax (cramping),Promethazine (nausea) and Hydrocodone/Apap because the most discomfort the last time was after removing the stent (severe cramping)that lasted a couple of hours. I have been phyically active during this time and bleeding had stopped about 24 hours post-op. The doctor said that there is a vitamin supplement that I may be able to take that should greatly reduce the chance of reoccurence. The stone fragment he saved after surgery is being anylized and I'll have the results in a week or 2. I feel so badly for those of you who have suffered so much more than I. If you are not happy with your doctors get a referal from your GP or someone else for another urologist. Having the patient stay reasonably comfortable during this process should be the goal of your urologists and if you are unhappy with yours please take it upon yourself to find another. Good luck to all!
Emma
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May 12, 2009 @ 12:12 pm
I have had numerous stents for PUJ which i get changed approx 3 monthly..Every one i have had so far hurts like hell and i also get bleeding too, so last week my surgeon tried a different stent and bingo no pain and no bleeding its great(apparently where i am they just insert a standard stent ?)..So i have suffered all this time for no reason...Roll on my corrective surgery...
Jenny
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May 14, 2009 @ 5:05 am
My name is jeny and im 37 weeks pregnant, 2 weeks ago i have a stent placed in my left kidney. i thought before the stent was placed that the pain was bad but when i was woken up from surgery of having the stent placed i then knew that having a stent was possibly the worst pain i have ever felt in my life. the doctors gave me demorl for the pain and sent me home that same day with 5 mg vicodin, well needless to say i was back that same day because the 5 mg vicodin was not helping AT ALL! tHEY KEPTS ME FOR 2 MORE DAYS TO MANAGE THE pain and then sent me home with a high and more potent dose of vicodin whcih helped but not very long, i could still feel the pain but i was too dopey to realize it, only had 2 hours of sleep at a time and some times i wouldnt sleep at all due to the severity of the pain i was in. i still have the stent now as we speak and i dont get it removed until after i give birth. currently i caqn barely walk, barely pee and feel like im being stabbed over and over again in my pee hole when i urinate. ive been passing blood clots in my urine for a good 2 days now and im not sure if its cause of the stent or if its cause im passing a stone. The sad part of all of this is the cotors have not found a stone but yet they have me in agonizing pain with a stent, that i have no clue what its purpose is other than to make my last 2 weeks of pregnancy HELL
! I fully sympathise with all of you who have and have had stents because its hurts worse than the kidney pain itself. id rather have kidney pain then feela stent!
Debbie
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May 22, 2009 @ 3:03 am
I wish I had found this site before have my kidney stone removed and stent placed yesterday. I would never have done it! The pain of the stent is much worse then the kidney stone because of the muscle spasms! The doctor lied to me saying that his patients reports that the stent isn't bad or very painful. I can't sit, stand, walk or even lay down without spasms and urinating is excruciating and frequent! I can't sleep even though I haven't been able to sleep more then 1-3 hours a day for a week! Doctors are the biggest liars on the planet!!!!!!!!!!!!!!!!!
Kara
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May 30, 2009 @ 7:19 pm
I have had my stent in for 2 weeks now. I am 33 weeks pregnant and have to have it in until I have my son. Its very painful...I can do hardly anything around the house at all and I have a nine year old daughter. They also said that it has to be replaced every 4 weeks due to the fact that I am pregnant. i wouldnt wish this kind of pain and suffering on my worst enemy thats how bad it is. And the urology group I go to are the worst, most unhelpful people I have ever met in my life. Oh yeah, and did I mention the fact that I have been hospitalized for these kidney problems 6 times in the past 2 months? Well anyways, I just had to share my horrible experience with everyone who is going through the same thing. You arent alone. I just hope I can make it through the next 7 weeks of this!!!
Jen
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May 31, 2009 @ 10:10 am
This article was really informative, but I'm super concerned now. My 10 month old son is going into the hospital tomorrow to have Lithotripsy done because he has a kidney stone. The urologist was talking about putting a stent in...I had no idea what a stent was, so I did research. Now, I'm just kinda freaked out. I dont want my baby to go though a lot of pain. :/
Hope
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Jun 2, 2009 @ 10:10 am
My kidney stone problem started in dec 08. An 8mm stone on the right moved and passed on it's own. The 13mm stone on the left started to cause problems early may. I was septic and hospitalized for infection and dehydration. One week later had ureteroscopy (removed an 8mm stone from the left)and a stent.
Two weeks later I had lithroscopy supposedly for a 13mm still in the left kidney but instead the urologist zapped a 6 mm stone in the ureter. The nurse gave me demerol in the same hip being lasered. BG MISTAKE. The pain was excrusiating. It felt like someone hit me with a 2 x 4 hundreds of times every minute. The urologist used 250 mg demerol to complete the lithroscopy. The pain continued not only in the effected area but also from severe muscle ache from straining during the treatment.
The stent still bothers me after three weeks.
I went on search for alternatives and found cornsilk, hydrangea, and marshmallow. The cornsilk lines the ureter and urinary tract to help pass the stone. It's like a kidney stone slip and slide.
The hydrangea helps break up the stone.
the marshmallow helps in circulation issues.
Drink a gallon of purified water every day, sipping all day, not chugging a quart at a time.
No sugar, no high fructose, no caffeine, no red meat.
Do this and you wont ever need a urologist.
Think about it... demerol, toradol, morphine, antibiotics, antispamatics, and other drugs are all very damaging to the kidney.
I'm off all pain meds for one week solid now. The stent is still in and two stones smaller than the urologist estimated are sitting stuck at the edge of the stent about an inch apart.
This stent is out of here as soon as I have my lithroscopy follow up.
tim
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Jun 2, 2009 @ 11:11 am
Hi, i had a 3mm stone blasted with a laser on 4/28/09 they told me most people are supposed to pass up to a 5mm stone but anyways i guess the little 3mm stone had a fish hook and it got stuck 1 inch above the bladder...so anyways after it was blasted they placed a stent in my right ureter... i had blood clots for about 3 days afterwards.... and then just occasional blood and now 5/2/09 my urine is just about to clear up ...but as all of you have said the PAIN WHILE PEEING IS almost UN-bearable i have to start and stop &quot; to let the pain go away&quot; but when i stop theres the bladder burning sensation..... i get my stent took out in 2 more days... I just hope and pray that its not going to hurt because i'm not getting put to sleep... and if it does hurt i hope its sorta just instant and then goes away. but i have to say the doc has kept me supplied with some pain pills and cipro &quot; infection&quot; pills..... so thanks doc , I will update when i have the stent taken out in 2 days to let ya all know what the experience is like.... until then I HOPE NOBODY has to go through this if you haven't already and REMEMBER WATER IS YOUR BEST FRIEND IN PREVENTING THIS.
Stephanie
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Jun 4, 2009 @ 1:01 am
I feel so much better after reading these articles. Mentaly that is, not physically! I couldn't sleep because of the intense burning after I urinated before going to bed. I am currently sitting on the toilet at 2:30am. The pain is so intense I couldn't decide if something was really wrong like an infection or something. I had a stent placed 2 weeks ago after I had an 8mm stonr blocking the ureter. The Dr said that it would be one week and then I would have the stones taken out and then another week the stent taken out. Well I called for an app and Wow, the dr was on vacation so I get the pleasure of waiting 3 weeks until the stones come out and who knows how long until the stent comes out.

I do not believe a word this Dr says. Of course he tells me that I can resume my activities and every thing will be okay. Except a few poeople complain of a &quot;little urgency&quot; All I can say is F that! I havn't been back to work, I can't be active, I really can not do anything.

It feels like the worst bladder infection in my life. I googled stent problems and now I see that this is common. I'd like to stick a stent in that Dr and see how his &quot;little urgency&quot; feels!
Stephanie
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Jun 4, 2009 @ 7:07 am
I feel so much better after reading these articles. Mentaly that is, not physically! I couldn't sleep because of the intense burning after I urinated before going to bed. I am currently sitting on the toilet at 2:30am. The pain is so intense I couldn't decide if something was really wrong like an infection or something. I had a stent placed 2 weeks ago after I had an 8mm stonr blocking the ureter. The Dr said that it would be one week and then I would have the stones taken out and then another week the stent taken out. Well I called for an app and Wow, the dr was on vacation so I get the pleasure of waiting 3 weeks until the stones come out and who knows how long until the stent comes out.

I do not believe a word this Dr says. Of course he tells me that I can resume my activities and every thing will be okay. Except a few poeople complain of a &quot;little urgency&quot; All I can say is F that! I havn't been back to work, I can't be active, I really can not do anything.

It feels like the worst bladder infection in my life. I googled stent problems and now I see that this is common. I'd like to stick a stent in that Dr and see how his &quot;little urgency&quot; feels!
Stephanie
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Jun 4, 2009 @ 6:18 pm
I feel so much better after reading these articles. Mentaly that is, not physically! I couldn't sleep because of the intense burning after I urinated before going to bed. I am currently sitting on the toilet at 2:30am. The pain is so intense I couldn't decide if something was really wrong like an infection or something. I had a stent placed 2 weeks ago after I had an 8mm stonr blocking the ureter. The Dr said that it would be one week and then I would have the stones taken out and then another week the stent taken out. Well I called for an app and Wow, the dr was on vacation so I get the pleasure of waiting 3 weeks until the stones come out and who knows how long until the stent comes out.

I do not believe a word this Dr says. Of course he tells me that I can resume my activities and every thing will be okay. Except a few poeople complain of a &quot;little urgency&quot; All I can say is F that! I havn't been back to work, I can't be active, I really can not do anything.

It feels like the worst bladder infection in my life. I googled stent problems and now I see that this is common. I'd like to stick a stent in that Dr and see how his &quot;little urgency&quot; feels!
Colby
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Jun 17, 2009 @ 4:16 pm
I have a 6.5mm stone that sent me to the ER on 06/04/09 - pain was 10/10 and I was sweating, chilled, and vomiting. CAT scan and an ultrasound (to rule out torsion) were performed. 06/12/09 I was scheduled for litho yet woke up in recovery to find out that a stent was placed. I was discharged with Ditropan, Septra DS, and Darvocet N-100 and scheduled for followup surgery....

Never in my 39 years of life have I experienced such pain and discomfort! While the ditropan does help with the bladder spasms, the Darvocet did not even begin to help with pain relief!!

Post-op I returned home to intense burning during urination, bloody, clotted urine, and a pain that was worse than ever. It's difficult to find a comfortable position to sit, sleep or even lay down and my doctors haven't been much help.

A midnight call to the GU resident resulted in me being told that &quot;everything you're telling me is normal so you'll have to just deal with it.&quot; Wow...wtf!???? I was even told that were I to go to the ER that I would be seen by this same resident and discharged....*sigh*

A call into the urologist's office got me some Vicodin which barely takes the edge off the pain. I saw my urologist yesterday and he was perplexed when I described my symptoms and tried to explain that I feel worse off now than before. He insisted that the stent &quot;was properly placed and bypasses the kidney stone so there is no reason for you to be in pain at all.&quot; The office visit ended with me being scheduled for Litho on 06/18/09 (tomorrow).

In short I'd like to say that I not only agree with most everything said here but can relate to it. I don't know what the problem is with most of our physicians not understanding or wanting to help with our pain and discomfort but I really wish that would change.

I'm not looking forward to the surgery or the stent removal but am wiling to go through it in an attempt to get this done and over with. My concern, though, is that the fragments could remain and act as seed material for further stones - can anyone comment on this please?

I think that as a pre-requisite for the position of a urologist, each physician needs to have had kidney stones and had the placement of a stent. Were that the case, I firmly believe their dismissive attitude would change...drastically.

Good luck to everyone.
Colby
Colby
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Jun 17, 2009 @ 4:16 pm
I forgot to ask in my previous post: how many of you all experience sporadic pain that would measure off the charts? Not to be graphic here but early this morning I woke up feeling as if someone was squeezing my right testicle with a pair of pliers and putting the pressure on!! I was doubled over in pain for 3hrs 19 minutes and would have gone to the ER if I could have gotten to a telephone.

This has happened to me 7 times since 06/04/09 - it's not consistent but when it hits.....OMG! Has anyone experienced this type of onset before? I brought it up to my doctor who didn't seem to have a clue about it.

Thanks in advance,
Colby
LaVonne
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Jun 20, 2009 @ 9:21 pm
Stephanie, get a new doctor! I had a kidney stone, the Dr. was on vacation for only 1 week, so I got another doctor who could do it in 3 days. Shop around.
laura
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Jun 21, 2009 @ 5:05 am
i left 2 comments on this site before about my experience ,just to update i had my stent in for 20 weeks (5 months) in the end.i had 2 lots of lithotripsy and 1 laser with changing of stent,i was in even more pain when they changed my stent than before(if thats possible) i am now 6 weeks without the stent and as soon as it was out the pain had gone ,no more pain meds no more anti-biotics no more toilet trips every 5 mins(so i believe it was all down to the stent).i had to see my urologist this week for x-ray and he said my stone has all gone which is the best news ever,but after what i went through for those 5 months i will never let them do that to me again.to everyone i,m sympathising with you all and i hope everything turns out ok for you.i think that they should find an allternative to the stent because when you have to live with it its a nightmare which nobody else can understand except those also going through it .good luck everyone xx
anna tagorda
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Jun 23, 2009 @ 5:05 am
is anesthesia required when removing a cysto stent?
Sarah
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Jun 28, 2009 @ 9:09 am
I think you have a local but heard it can be painful for a split second.Ive only had mine removed under a general as i always have a new one put in.
Mike
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Jul 11, 2009 @ 11:23 pm
I have had surgery to move my ureter tube that by birth was connected to kidney in the wrong place. The operation was done using a robot. I still have a stent in my tube and have been having lower stomach pain on and off. Is this due to the stent? The operation was done on 14 May 2009.
Lori
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Jul 21, 2009 @ 4:04 am
Thank you for all of your comments. I had an emergency nephrostomy placed last week following botched surgery to remove my ovaries damaged my ureter. Apparently, a cystoscopy was done at this time and the blockage was discovered,but they were unable to get thru the blockage to place the stent, and I had too much fluid build up to do anything more than the nephrostomy.

I was released from the hospital after 10 days and told by my urologist to schedule a stent placement when I got home. Being on hard hitting pain meds in the hospital, I didn't bother to ask any questions, came home, and made my appointment.

When I called for my appointment, the nurse told me I would have &quot;conscious sedation&quot;, which is what I was also told for the nephrostomy - worst pain I have ever felt in my life, especially while someone is standing over you saying &quot; you may feel a little pinch&quot;. This sent me into a panic, not wanting to go through that sort of pain again. I was given NO information about what to expect, what complications may be, if any pain meds would be given, that these things weren't permanent...

I have now sat up till 5 am in the morning, due at the hospital at 7:30am. I am cancelling my appointment until I can get more information. I'm not happy about sitting longer with this bag sticking out of my back, but I'm also not willing to subject myself to more needless torture.

Thoughts and prayers for all of you.
martha brown
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Jul 21, 2009 @ 5:17 pm
This site really helped me feel better about myself. I have cancer also stage 4 with numerous treatments and surgeries and have never had pain like this before Also I think urologist are the most arrogant doctors I have met. and what is this pain med thing. who the hell are they to tell e what y level of pain is. I was discuarged today adn the nurse wouldn't give me a dose of pain med for 4 hours before I left because &quot;they aren't allowed to give it on discharge&quot; I think pain is a terrible thing but pain combined with anger and distrust is double hurt. I was given no information about risks or pain before procedure either. I am definitely afraid of removal but intend to be so stoned they will have to drag my body onto table.
Julia slaney
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Jul 23, 2009 @ 1:01 am
Thank you all. At least I know I am not crazy. I had my stent removed yestereday after having a stone removed by telescope. The Dr. had to laser it in half to remove it. The stent was almost as painful as a stone and the removal was terrible. It is now the middle of the night and I have never been in such pain in my life. I can't tell if this is another stone passing or residual pain from the stent. The pain is unbearable. I took my last percoset and 2 vicodin. Thanks to all your comments I also took Detrol which I happen to have and Flomax. The pain is subsiding slightly. I'll call the Dr. first thing in the morning. He has been very responsive. I have had many bad experiences with Urologists. They don't seem comfortable dealing with women. They treat us like hysterics. However, the one I have now is very kind and patient. I don't know if I'm allowed to give his name. But if you're physician is unresponsive and unsympathetic please change Doctors. There are good ones out there. Good Luck to everyone.
Michelle Martin
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Jul 23, 2009 @ 7:19 pm
I am a 39 year old female. Last week I was diagnosed with a 10mm stone in my left kidney that is blocking my kidney. I am going in on Monday to have a stent put in and then in 2 weeks they are going to blast the stones (I also have a 3 mm stone in the left kidney) and hopefully they will pass with no problems. Reading the stories on this site....I'm really getting scared. I have already been off work for 2 weeks due to the pain in my kidney and taking pain meds. I'm sure you'll will be hearing from me again.!
Michele
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Jul 26, 2009 @ 9:21 pm
This is my 5th stone and it was removed with stent placement last Monday. I too had forgotton had terrible these stents hurt and was unsure about the removal which is this coming Thursday. I also have an arrogant dr. who thinks there is no &quot;real&quot; pain involved and I am now worried about having enough pain meds for when I do have it removed. I'm with Martha, the previous poster, and I had to laugh when I read she intended to be completely stoned and they would have to drag her butt on the table to remove her stent!!!! That lady has to be related to me somehow, I just know it!!!! I'll be back to let you all know how it goes and if the doc makes it through the procedure or not, cause if I'm in pain, he's not sure as hell not going to be comfortable!!!!
Ray
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Jul 27, 2009 @ 9:09 am
I am a male and am booked in to have my stent removed today. like everyone else here, this stent was the worst experience of my life. Having survived two heart attacks and a total of seven stents implanted in my arteries, I can't even compare the pain and suffering from the kidney stones and the stent from my kidney to the bladder. Peeing every 5 minutes and the burning sensation that follows. The stent was placed on June 9th and lithotripsy was performed June 11th but due to the size of the stone another lithotripsy was performed July 20th. My Urologist is a decent guy and we discussed the pain I encountered, but his response was to prescribe Percocet and stool softeners. He tells me that taking the stent out is a simple 5 minute affair. Hopefully this will all be over today. Good luck to all who are still suffering. BTW. How come most of the comments here are by women, I know men also suffer from kidney stones!!
Ray
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Jul 27, 2009 @ 3:15 pm
Well, got stent removed today. Not as easy as I thought, quite painful and very uncomfortable but it's done. I even kept the stent as a souvenier. It's all done using local freezing, no needle just cream and a cystoscope to go through the penis and grap the stent, which was sitting in my bladder. Damn uncomfortable and an uncontrollable urge to urinate makes it very difficult. The urogolist did say there would be a burning sensation upon urination and traces of blood. He was right, I thought I was going to pass out while trying to take a leak at Burger King. That was really painful and some blood apparent.

Now I can actually go and cut the grass, which is growing like a weed. Yippee.
Felicia
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Jul 28, 2009 @ 4:16 pm
Mount Vernon, WA: How is it I am the only one that has only a passing idea as to what is GOING ON WITH ME? I went to the ER with right flank pain on 7/13 the doc there figured it out quick and confirmed it with a CT scan. Only stuff I know is from that visit: 1. I have two (2) right ureters 2. Both ureters on the right were blocked with larger than 1 CENEtmeter stones 3. Left kidney one larger than 1 ctmtr stone. They gave me anti-biotics &amp; oxycodone APAP &amp; sent me home. Referred to a local urologist I had a pre-op appt that confirmed all of this as he examined the CT with me. He then scheduled my surgery on Fri 7/17, the word SCHEDULED should not have been used, perhaps penciled in would have been more apropos. No admitting x-ray to guide the surgery on the location of the stones until I mentioned that I though we needed it. My 1pm surgery time was actually 3:45pm &amp; when I woke NO ONE told me what had happened! On the discharge instructions it read to wait for the doctors office to call to schedule the follow-up appt. I waited till Wednesday. When I was told the op-report still was not available and the doctor would not be able to talk to me until 8/5 when the stint would be removed, and that this appt would be much like my first exam I had experienced with the doctor, just a brief exam. Did I mention that I HAD NOT BEEN EXAMINED, the CT had been examined. So staff now saying that they would be removing a stint that she had no proof had been placed. OMG! Forget about that, I lowered the boom on the Office Manager in a nice way. You can yell for 10 minutes and have little affect, or you can be nice but persistent for an hour and really make an impact. HA. In fact I learned today that I had TWO stints placed on the two right side ureters and that the doctor had not gone after the left side kidney stone. Just a little job security for him and something for me to look forward to. YIKES. Sadly no one can tell me why I have had to suffer with these stints for such a long period, I can only guess it’s something to do with the size of stones, or perhaps that the doctor tried before the cystoscopy, the ureteroscopy with the Basket Grab Procedure, which failed and they ended up blasting with the laser quite a bit before they could clear the boulder/stones debris. I read that the stent ensures the ureter doesn’t spasm and collapse after all the trauma of being stretched and scratched. Which after a two hour procedure I’m guessing a lot of both occurred. Guess I will find out for sure next week.

In my internet search I also found that “The implanting physician is responsible for informing the patient of the requirements, consequences, and complications associated with stent placement. Failure to do so has obvious management and potential mediocLEGAL implications.” PERHAPS WE SHOULD EXPLAIN THIS TO OUR DOCTORS!

This site is wonderful, but I feel the AFTERCARE management section should include some of the information some of the other User Contributors have offered as well as: 1) That patients should continually sip water not gulp down sporadically. 2) To monitor the urine output/flow. Not Enough Input-No Output-Say Hi to UTI! 3) Stent caused symptoms like bladder irritation causing frequency and urination discomfort and leakage. 4) Urinary Tract Infection (UTI) due to the implanted stent. 5) Should the stent pass on it’s own the office will want to see it. **Though once the stent/s are removed all symptoms resolve almost immediately.

I also liked the description of the ureteral stent as being about the same size as a plastic coffee swizzle stick and about 10-12 inches depending on the type used due to the size of your particular ureter/s.

Did I mention I LOVE THIS SITE! Thank YOU all for sharing and hopefully others can come here and learn more about what is happening to them before it happens to them! It is not often that we can honestly say I FEEL YOUR PAIN! To bad we can not bottle it and share. = (...)
smiley
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Aug 4, 2009 @ 5:17 pm
I'm a fairly health female in my late 30s,I had a renal stent placed on Thursday 7/30/09 due to 2 blockages in my Right kidney one is at the renal pelvis and ureter junction; I've known this for a while and been dealing with the pain for the last 2years.I'm fortunate to have a great Urologist Dr. J Johnson in Arlington Tx; who explained the procedure thoroghly to me;however, he stated that I'd only have minor discomfort for one or two days but that has turned out to be the biggest understatement of the year! That thing hurts beyond words 6 days later and I'm still bleading. The pain is worse when I sit or lay in one position for an hour or longer and when my bladder fills up to the point that I can barely walk!!I only have the one kidney and so I don't have many options.Does anyone know how long this pain lasts??? Help please!
Michelle
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Aug 10, 2009 @ 10:22 pm
My mother has had a (permanent) stent for two years now due to scar tissue in her ureter. (She only has one kidney). She is in horrible pain daily and can't take narcotics because they cause her bladder to stop working and have urinary rentention, then she has to go to the emergency room and be catheterized, leading to still more pain. Is there anyone who deals with pain management for people with permanent stents in the DFW area? Her doctors are compassionate but they seem out of options.
Alice
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Aug 16, 2009 @ 12:00 am
Thank God for this forum. I thought I was going crazy. My urologist never mentioned, even casually, the living hell that having this stent put in would cause. The demonic pain is bad enough, as well as the inability to function in your normal life, even with the help of medication, but the sheer lack of bedside manor and humanity from the doctor and nurses is inexcusable. I received more empathy from the scheduler in the office than I did from these insufferable bastards. It is bordering on criminal the way they herd you in and out of these facilites like cattle in order to &quot;free up a bed.&quot; On Monday, when I get this thing out, I am going to let these pricks know that they need to work on the skill of compassion....in just a little uh nicer way. God bless all you fellow sufferers out there. The one slice of heaven we all now have is to remember what it is like to appreciate our health more often.

Take care, Alice
Emma
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Aug 22, 2009 @ 10:10 am
I only have the 1 kidney and have also a blockage (PUJ) so have permanent stents,for the last year i have lived on Demerol as the stent pain can get so bad.Yet every time i see the Urologist he looks at me as if i am mad to have such pain..So on the 1st of Sept i find out when i can get reconstruction surgery( also the robotic way )Cant say im looking forward to having a nephrostomy again but thankfully or should i say hopefully only for a few days...I was wondering what the pain was like after a pyloplasty(sp?)...Hugs to all.xxxx
Lori
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Aug 22, 2009 @ 6:18 pm
I posted on this site a little over a month ago, about 3 hours away from going to the hospital to have an attempt at a stent placement via nephrostomy with no more than a little sedation. Mine was not due to a stone, but from a ureter injury that occured during a previous surgery. This injury was not caught immediately despite my constant pleas to the hospital staff that something was very wrong. 3 days later I was in renal failure, and had an emergency nephrostomy placed.

Well, that morning I chickened out, and opted to not go to the appointment for stent placement, and called my urologist instead. We discussed at that time that ureter reconstruction was more than likely where I would end up, so it was agreed that 6 weeks later, we would proceed with the surgery. About 4 days after that appointment, the nephrostomy began to leak, filling my pelvis with fluid, and making the decision for me that the reconstruction surgery had to occur immediately.

I woke up from this surgery to be in the absolute worst pain of my life. I still had the nephrostomy, and added a stent to my newly replaced left ureter, as well as a foley catheter and a surgical drain from my stomach. As days progressed, I felt much better, with some pretty bad pain in my groin - I am assuming due to the stent. After a month in the hospital, I finally made it home, still with a foley, still with a stent, and still with a nephrostomy. I was able to leave my house yesterday for the first time to attend an open house for my 8 year old's school. This felt GREAT to be able to leave the house, but after about 30 minutes, had to come home and hit pain meds.

Hopefully, I lose the foley and nephrostomy on Monday. Both of these procederes have caused me a little anxiety, along with the idea of getting this stent removed in another 3 weeks. At least it will (should) be over for me then.

I can say that the stent pain I have has gradually gotten better. I have actually been able to go one day wothout pain meds. I don't know what it will be like when the foley is removed and I have to pee on my own, but hopefully it won't be to horrible.

Thank you so much to all of you that have posted. I received enough insight from your posts to no longer fear the unknown. Good luck to you all!!
Donna
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Aug 28, 2009 @ 2:14 pm
Cathy --

I, too, am going through the burning at the end of voiding (which is how I found your post here), and the need to go NOW is horrible. I am getting my stent out in a week or so. But please, please, if they tell you you need the stent, DO IT. The alternative is worse. I had a kidney stone move and block the urethra TOTALLY. The poisons built up in the kidney, and moved to the bloodstream. The scary thing is that there was no pain, nothing I could put my finger on as a problem other than that things &quot;weren't right.&quot; My husband finally called an ambulance after I spent a day at home in bed, and was unable to decide anything (like, &quot;Are you hungry?&quot; &quot;I dunno....&quot;) By the time I got to the hospital, the infection had moved into my bloodstream, and I was very close to death. I spent over 2 weeks in the hospital as they tried to get me over it. They succeeded (naturally -- I'm writing this, right?), and I have now gone through 3 rounds of lipotripsy (sp?) to blast those stones into little bits that I can pass. So yeah, I'm dealing with the burning, looking forward to the removal of the stent, but also glad to be alive to complain about the burning!
Thomas
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Sep 7, 2009 @ 2:14 pm
Don't know if this will help anyone out there. Since March of 2009 I have had a half dozen stents placed and removed. Some of them were from a nephrostomy and some of them through the bladder. After talking with different urologists and radiologists I have learned that the size of the stent is crucial. There are typically three lengths of stents depending on your height. I was actually able to bear this last stent, I talked with the radiologist prior to the stent placement and he took special care to measure me for the proper one. Post placement I took the following medications; Detrol LA 4mg twice a day (doctors usally perscrib once daily, talk with your doctor about taking twice), over the counter AZO, 2 tablets twice a day (will cause your urine to turn orange but has a chemical that numbs the urinary tract) hydrocodone APAP 10mg/500mg at lest twice a day, more if needed, at least 20 oz. of water an hour and a glass of cranberry juice a day. I have since had that stent removed as of a few days ago after a procedure and the doctor inserted another stent that I dont EVEN KNOW IS THERE, there is no burning, no pain, no bladder spasms, nothing. The stent is new on the market, my docotr said it is softer and instead of curling or pigtailing at the ends it has an oblong loop at both ends. I do not know the name of it, although I know it's blue as I got a look at it before I was knocked out. The doctor did have to special order it because the hospital did not carry it. When I go back for my follow up I will ask abou teh name and post it. Until then, hang in there and hopefully the above mix of meds will help you as well.
Stella Beavis
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Sep 13, 2009 @ 5:17 pm
I had/have a 10 cm stricture in my right urethra, no stones were found, after CT scans and ultra sound scans nothing abnormal has been found to have caused the stricture. A PET/CT scan shows no cancer, I have lost funtion of my left kidney as a side effect of radiation treatment for stomach cancer five years ago. I now have pain in my right side, in my right ribs and right hip, the Urologist has inserted a stent to the right urethra which has helped with drainage but I have constact indigestion. The stent has been in place for 2 months now, Has anyone else had indigestion with problems with the urethra. I have lost 16 pounds in weigh and have no appetite, is this related?
Megan
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Sep 15, 2009 @ 3:03 am
Hello Everyone
Thank god I found this website! I'm glad to hear everyone else is experiencing the same things I am.
I'm 25 and 27 weeks pregnant with a stent in my right side. I am in the most unbearable pain I've ever experienced. I went into the hospital with right flank pain Aug 25 and they couldn't find any stones but apparently my baby is blocking my kidney, so therefor they had to place a stent. I have two words.... I'm miserable!!! I can't do anything for myself, I can't walk more than 2 seconds and I'm in constant pain. Like everyone else my doctor told me that it was only going to be uncomfortable.... Ha ha ya right... I still have blood (lots) in my urine and occasionally have clots, its so painful wen I urinate that I literally grab something and squeeze for dear life. I'm crying all the time. Its horrible!!!! I have decided that I'm not waiting till my babys born to get it removed I'm going this week to get it out. I would rather have the pain in my flank than go through this 24/7.... I wish all of u good luck and hope ur pain eases.
Karen Winstanley
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Sep 22, 2009 @ 5:05 am
Can my husband &amp; I safely have sex after he has had a stent inserted 2 weeks ago?
blf
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Sep 23, 2009 @ 11:11 am
My husband is going through the exact problems with this stone, stent, and stent removal as is everyone above. I really do not understand doctors, they seem to care less. Bet if this were their pain it might be different. What i haven't seen in the above info. is blood clots. This is my concern. We are on day 6 from the day of stent removal. My husband is passing large clots that will sometimes block urine flow and this has gone on since the placement of the stent but worse since the removal and we had a second opinion that said give it 7-10 more days. My reply was that I guess when he passes out cold and has lost too much blood I'll take him to the hospital and then I might get some answers. FED UP! Seems like with all the MODERN TECHNOLOGY we would be a little further along.
Rose Mary
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Sep 28, 2009 @ 2:02 am
Oh my gosh am I glad I found this site! I was googling 'blood clots with kidney stent's' and found it. I had surgery last Tues. 9-22, to remove my 4, 5, 6 &amp; 7th stones in 3 yrs and the doc said he needed to put in another stent - to prevent damage to the ureter from having these stones since April. He knew I did not want one as the last one hurt so incredibly bad. (Last one had a string attached and the next morning I took it out myself (no one said I couldn't)). I have NEVER experienced such horrific pain, and I have chronic pain and have pretty bad migraines. I am supposed to get this one out tomorrow afternoon. He left one stone up in the rt kidney that he couldn't get to and said it was small enough to pass on it's own. He, as well as his staff, say 'it just shouldn't hurt this much', when I call them to complain. That is supposed to make me feel better? I will never have another one of these. I noticed from 'blf' that you mentioned clotting. I have had bleeding every day and a lot of clotting the past few days. My activity level is nil so I know it isn't that. I am on vicoden, dilaudid, pyridium, and cipro. He had me on flomax prior to surgery but it causes pretty severe chest pains so I can't take that any longer. I'm just so concerned as to why no one listens when we all tell them how badly we hurt and only get the 'it shouldn't' answer! It is unbelievable to me and unethical. I called the nurse early Fri.afternoon and she told me my doc was out of town all week and to go to the ER - not to even come in and let someone else see me (although she did mention who was there) and kept saying I shouldn't be hurting. Period. Not, what else can we do, we've got to stop the bleeding, the clotting, let me put your mind at ease -----Nothing! Have any of them ever had a stone let alone a stent??? I, too, am totally fed up with this type of treatment or lack of - especially from the nurses - since the doc is gone I'm not getting advice from him - but he is getting an earful tomorrow - and I'm telling him about this site!
Alice Catron
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Oct 5, 2009 @ 10:10 am
I just got home from a dr visit and was told they would be doing the stent thing to my left kidney and got on Google to see about kidney stents. My husband has 6 in his heart and we are educated on that, but not the kidney kind. You all have been maybe a bit too enlightning, but I would much rather go in with my eyes open than not knowing anything. I have no stones, but possibly scar tissue or something from bladder prolapse and urethra repair surgery in April of this year. My kidney problem was found when I had an MRI for my spine and hip. I was having severe pain and have been diagnosed with Osteoperosis and Degenerative Disc Disease...arthritis of the spine. I also have 4 bone spurs. This started with the recuperation from the prolapse surgery. The hip MRI showed the left kidney malfunction.
I am on the 2nd doctor in the group cause the first one was a jerk. This guy is very informative, but said nothing about pain from the stent. He did not say it would be staying though. He said it would be to drain the kidney cause it is full and not going anywhere.
He did talk about a tube from the back with a bag to see if the kidney was functioning at all before he would take the kidney out.
The first guy said it would be okay to leave it in even if it didn't work as long as I was having no pain.
This guy said it should not stay in cause it could cause secondary infection and cause more problems.
We have been told by my husbands MS doctors that &quot;Medicine is not an exact science&quot; YA THINK????
I do not want to be one of &quot;DR HOUSE's&quot; patients believe me.
Thank you all for your time and honesty. I do want to be an informed patient.
I pray for peace and a pain free life for you all.
alice
Billie
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Oct 7, 2009 @ 10:22 pm
I am so glad I found this site, maybe for a reason different from most of you!!!! I too had a stent inserted in an emergency procedure this past Sunday. I have suffered from Kidney Stones since I was pregnant in 2003. At the time I was 2 months pregnant, and began having really bad back and side pain. I was afraid I was losing the baby, or having an entopic pregnancy, etc., BUT it turned out to be calcified kidney stones that were being caused by my parathyroid that was totally not working! The parathyroid, or &quot;gland beside the thyroid&quot;, controls the amount of calcium your body absorbs and for whatever reason, when I got pregnant, my parathyroid decided to go whacko! I was eating tons of cheese, milk, yogurt, but instead of my body absorbing all the GREAT calcium, it was just leaving it in my blood stream to be deposited into my kidneys to make a lot of nice, big, sharp, kidney stones!!!!! During my pregnancy I had 3 bouts with stones, each landing me in the hospital. My doctor finally decided I needed to have my parathyroid removed ASAP, because there was no record of how this problem could possibly affect my unborn son... It was supposed to be a 3 hour surgery, at the end of my 2nd trimester; i.e.; MAJOR SURGERY AT 6 MONTHS PREGNANT and being under anesthesia for 3 hours!!!! The 3 hours turned into 5 hours, and at the end, the surgeon could not find the parathyroid (we have 4 in total that should be in pretty close proximity to our thyroid) that was causing the problem, however, he did remove 2 of the healthy ones, AND to top it off, removed my thyroid just in case the bad parathyroid might have been imbedded in it. So after 5 hours of surgery, I had 1 bad parathyroid, 1 good parathyroid, AND NO THYROID AT ALL, meaning I'm on thyroid med's for the rest of my life!!!
It is now 6 years later, and after thousands of dollars, they have still not found my parathyroid, but we are still looking. The main point of this post, is, any women out there that are pregnant and just started getting kidney stones, or women that have already had children, but started having kidney stones while pregnant, please go have your calcium levels checked! At one point mine was as high as 12.5, and I think the norm is 3.5-5.0.
I hope this helps even just one person so they don't have to go through having kidney stones for the rest of their lives!
Good luck to everyone. I get my stent out on Monday, and I can't wait! I don't care how bad it hurts, at this point, nothing really hurts that bad anymore anyway!!!
p.s. The BEST PART of this… my son turned 6 yrs old on August 27th and is totally healthy, happy and normal!!! :)
Robbie
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Oct 18, 2009 @ 3:03 am
I had a stent put in after a trip to hospital over 2 months ago. The doctors found I had an 8mm stone blocking my ureter and another 12mm stone stuck in my kidney. That stent was in for 6 weeks until I could be scheduled for the blasting by laser. The stent was uncomfortable and I passed blood a lot of the time, and struggled to walk far. The pain / scraching in my bladder got steadily worse. I was hoping when the stones were finally lasered that I wouldn't need a stent, so was pretty pissed when they told me that they'd put inanother one, and it would be there for 6 more weeks. Initially, as with the first op, the pain was worst when urinating. I felt like someone had cut the inside of my urethra, and if I had to hold on, the pain would build up in my kidney. My wife reckoned I sounded like I was in labour when I was peeing. I've had this second stent in for nearly 4 weeks, and I've noticed the pain changing. The scratching in my bladder is getting worse, and my kidney doesn't hurt as much when peeing. The really bad burning sensation has pretty much gone, though peeing isn't quite the relief it used to be. I've also had a lot of blood, clots and lumpy white bits of flesh - I guess the insides of my bladder are getting scraped away. I can't wait to get the thing out, though they want to xray me first to ensure I've passed all the pieces.
I'm heartily fed up with the whole thing. I've lost 3 months of being able to walk and rumble with the kids. 20 years ago I guess they'd open me up, remove the stones and sew the holes up, with maybe 2 weeks of downtime. Now days, I get 3 months of downtime.
Good luck to everyone else with stones. I'll post back and let you know how it goes.
Robbie (New Zealand)
Rochelle
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Oct 27, 2009 @ 5:17 pm
I am currently 31 weeks pregnant... I went on a vacation with my husband and my daughter. While on vacation I started to suffer from very extreme back and abdominal pain. As I have suffered from kidney stones in the past I figured that is what was happening this time. I went to emergency where they did an ultrasound that revealed that I had a 1 1/2 diameter sized kidney stone stuck in my ureter. I have never had this happen before as in the past I have always passed the stone or had it blasted out. The doctor at the hospital advised me that I had to be admitted and that a urologist would have to put in a stent. I was admitted to the labour and deliver ward due to my pregnancy so that my baby could be monitored. The urologist came to speak to me and advised me that due to the fact that I am pregnant they would not be able to remove the stone as it was too risky so they would put the stent in. The urologist assured me that I would be back to normal and that I would be able to enjoy the rest of my vacation and that I may suffer from some MILD discomfort. Well here I am three days after the stent was put in. I am unable to do ANYTHING. The pain is so intense. I went back to emergency as the pain was so bad and was told that I was suffering from bladder spasms and was given a prescription and sent on my way, being told that the prescription would take away my intense bladder pain. Well again here I am still in intense pain, the medication didn't help at all. I can't move, I can't sleep, I have no appetite and I can't do anything with my daughter. They have told me that I have to keep the stent in till I have my baby in Dec. I don't think I will make it that long. I have made an appointment with my own urologist when I get home and I am desperately hoping that he can do something to help me, but after reading everyone's posts I am afraid he won't be able to. I originally thought that I was an exception and that the stent shouldn't give me so much pain, but from reading this I see that many people go through what I am going through. I feel like the doctor misled me when he told me that I would be back to normal. If I had know what pain I was going to be in I would not have had the stent put in. I will never ever have a stent put in again. I would much rather have surgery to remove the stone and recover from that. I am sure it would be much less painful.
Brenda
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Nov 3, 2009 @ 1:13 pm
I just has laser kidney stone surgery last thursday. That was a walk in the park compared to the pain this stent is causing. I cannot function. I am taking vicodin every four hours to numb the pain. I am also taking the pills that color my urine. They really don't seem to be helping. I am ok as long as I don't sit, stand, walk or pee. Other than that things are good. I am supposed to have this removed next Tuesday. I've already taken several sick days from work. How will I ever get back to nromal again?
Lynn
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Nov 4, 2009 @ 6:18 pm
On Oct. 13th i came home after a taekwondo class, went to the bathroom and had bright red blood in my urine. I went to my local urgent care center, they checked for a UTI, that was negative, so I was told that I probably have a stone that was passing. They sent me home with vicodin and told me to see a urologist on monday if the stone did not pass. That night I ended up in the ER with extreme pain and vomiting. They did a CT scan that did not show a stone in the ureter, but 2 in the kidney. They told me the other stone passed, gave me some more vicodin and sent me home. I managed on vicodin for the weekend and then saw a urologist on monday afternoon. He examined me and after trying to palpate my lower right abdomen and me jumping off the table, he ordered an IVP for the next morning. That showed a 4mm stone lodged in the lower ureter. He scheduled me to have a cystoscopy for the next morning. They went in, lazered the obstructing stone, removed the debris and placed a stent. A week later I was up all night throwing up and having worse pain than I originally did. I went back to the doctor the next morning and they removed the stent (they thought that the stent was causing the pain). 2 hours later I was back in the ER (a different one) with pain that was even worse and more vomiting. They immediately started me on pain meds and did another CT. It did not show an obstruction, but they admitted me, put me on a morphine pump, and scheduled another cystoscopy for the next morning. The doctor injected me with dye prior to surgery to see what was happening. He did not find an obstruction, but did find that a portion of the ureter had collapsed, he used a balloon to open it up and placed another stent. This stent had been causing some pain, but the doctor prescribed enablex and that has helped. I'm still taking it easy, but not taking pain meds anymore. I have to keep the stent in until december so that the ureter can heal. I wanted to write in to let everyone know that enablex may help with some of the stent pain.
Heather
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Nov 12, 2009 @ 9:21 pm
HI, The 1st stone I ever had was 5mm. I was 7 months pregnant with my son. I went to the ER. The found it &amp; I refused to have a stent placed. I developed Hydronerfroses. Where your Kidney swells &amp; urine can't get to the bladder. They enduced me at 39 weeks. I had a healthy 6lb 2oz lil boy. After that I had a stent placed. Since I breastfeed, the DR refused to give me any pain meds at all to deal with the pain. I sat in my house Friday night, Saturday &amp; Sunday crying, refusing to eat, or drink or even move. Over the counter drugs did nothing. I called the DR all weekend flipping out, he ignored me. I went to the er, they did nothing but sent me home without any pain meds. Finally, on Monday I got ahold of my OBGYN &amp; he gave me Percocets, low dose to deal with the pain, which did not help. After 2 weeks I had Litho &amp; another stent placed. I went home waited 2 days in sever pain again &amp; then removed the damn stent myself. I pulled the string &amp; got it half out &amp; made my husband pull it out the rest of the way. When I went back for my check up the DR asked where it was &amp; I told him I removed it &amp; he was not happy, but I was. 18 months later &amp; a new DR, I had the surgery again. My surgery was yesterday I was out at 4pm. Litho &amp; stent placement the stone was 10mm long by 6mm wide, same side. I just took my stent out again. I rather have a million children then to keep that thing in &amp; I told the DR that. I also told him I would remove the stent myself &amp; he laughed. It does not hurt. Its just a tugging feeling, if you pee &amp; pull at the same time it is very comforting. It feels so good to have it out. If your DOC trimmed your strings your stuck with it. I carried that stone for 9 months because I was terrified of the pain. There is not any meds that make you feel better. It is awful to feel like your peeing yourself when your an adult &amp; not being able to control the pain &amp; burning. After I took my stent out 10 minutes ago, I peed it hurt, but I feel ALOT better then when it was in.
angela
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Nov 16, 2009 @ 5:05 am
i had a stent put in about four weeks ago due to the fact that i am 36 weeks preggo they wont give me pain meds, i feel like id rather be dead at this point i go thru about ten Tylenol a day the pain instead of easing off like i was assured is intensifying as is the blood in my urine is there anything that i can do to help ease this misery i drink water stay trying to resting but these days laying down is just as bad as jogging i always hurt what can i say to my dr to make her see this isn't a joke
marsha meredith
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Nov 16, 2009 @ 3:15 pm
Wonderful article...My Doctor has been unable to explain what is going on with my 2 stents in left kidney. My stents have been in 7 months...prior two lithotripsy procedures as well as laser and when he went to physically pull them out, without any medication, I was sure he was trying to kill me! He said that they wouldn t come out due to ston Ies and crystals had formed all around the two stents. I have fired that doctor who has tortured me, and cost already $500,000 and I feel like I am going to die! I wonder what I can do now? Will the stents kill me? there is no string...and I will probably have more stones due to being on of the first patients to have intestinal bypass surgery in 1972. I am no longer fat...but now I want to get help so I won t die with these stents! I need answers...please help! thanks marsha meredith age 61
Dori
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Nov 21, 2009 @ 8:08 am
I am so glad to have found this forum. I am a 58 year old male. I had a cancerous tumor removed from my bladder during a TURBT procedure. The tumor was located on the ureter so they had to install a stent. I have always been able to tolerate pain and discomfort well, never needing to take the pain medications prescribed. Well, this stint or the combination of the procedure and the stint, has really thrown me. The pain during urination or when getting up in the morning has been awful. I have read many articles that said the stent procedure was at most uncomfortable and was getting very concerned that there may be a problem with the insertion of my stent. Thanks to all who have written, it doesn't help the pain go away, but does ease my concerns that my procedure had gone bad.
alaska
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Dec 1, 2009 @ 2:14 pm
I had Pelvic Ureteric Junction Obstruction (PUJ) and had keyhole surgery to remove the constriction in the Ureter followed by a stent placed between the kidney and my bladder. It was in for 6 weeks before being removed under a local. Maybe it depends on the type or size of the stent but my experience was not really as bad as I expected. Whilst the stent was in I only experienced occasional tainting of urine with blood, a bit of poking, needing the toilet a lot and occasional mild pain in bladder/kidney but on the whole I expected it to be a lot worse than it was. The stent was 2 mm diameter 26 cm long and coiled in the kidney and bladder (no string). I had worked myself up to the removal process expecting it to be horrendous, but I really cannot stress enough that the process sounds much worse than it is. Things to prepare for when going in for stent removal I would say are as follows:

1. Can sting a bit when they put the anesthetic jelly in your pipe (probably the worst bit);
2. The cytoscope moving up to your bladder is fine and whilst a bit uncomfortable does not hurt;
3. It starts to get more uncomfortable as the cytoscope starts to break through to the bladder but then it settles down very suddenly.
4. At this point you just feel like you need to urinate and it can be mildly uncomfortable if they have to move or rotate the cytoscope to find the stent.
5. Once the end of the stent was grasped by a wire passed through the cytoscope I was told to take a deep breath and then out it all comes - very quickly, and didn't feel any pull or sensitivity in the kidney. The pulling out really is that quick and painless, basically if you blink you'll miss it.
6. Afterwards there was burning and stinging when urinating, a little blood and some kidney pain, but all pretty tolerable/manageable.

Hope this helps anyone worrying about getting the stent pulled out.
Bill
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Dec 1, 2009 @ 9:21 pm
On November 23rd, (2009) I woke up with (even after having stones in the past) what i thought was just muscle pain in my right side (rear). On my way to work, the pain got worse and pretty much unbearable, so i went to the local emergency room. They took fairly good care of me in the ER considering i couldn't be ignored because by this time i was sweating, vomiting and cursing in the triage room. They gave me a shot of Torodal and started and IV, and did a CT scan to find one 8mm Stone in my left ureter and a 5-6mm in my right. By the way, The Torodal that they called a &quot;wonder drug&quot; for kidney stones did nothing for the pain. They quickly moved up to morphine. I was admitted into the hospital and put on more IV's and Morphine injections for the pain. Later that night i was brought into surgery for A laser litho. Ive had a litho before so i didn't see much problem with this. When i woke up, i was told by the recovery nurse that the stones were bigger than expected and they had to stent both sides. This is the 7th day since the stent placement, and it's miserable. The burning urination isn't as bad as the &quot;cut-off&quot; when if feels like something is wringing my kidneys out on both sides. My doctors don't feel that I should need pain medications because the stents are running passed the kidney stones in both ureters and they stones shouldn't be moving. I don't care what they say, this is miserable. Ive had stones before, and a litho and neither really live up to these stents. There are so many blood clots, that i can literally feel fall of the edge of the stent and fall all the way out. Drinking does help a little, if you want to pee every 10 mins instead of every 30 mins. Now im worried as could be about the removal of these painful motherfluffers. Im hoping i can get away with him removing them while he is doing the litho. I'm not a slouch when it comes to pain tolerance either. But stents should be the new way of torturing people, cause it's miserable.
Christen
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Dec 2, 2009 @ 9:21 pm
My goodness it is nice to see that others have had the same pain issues with their stents. My doctor just does not get it that I am in constant pain even after the stone has been removed. I am pulling this thing out myself...doc told me in a snide way over the phone that I could just pull it out myself if it was still bothering me. I going to do it but am scared shitless. Any wisdom on pulling the stent out? Anyone done it themselves? When it is removed (from a female) at the urologist office what do they do?
Justin
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Dec 11, 2009 @ 2:02 am
Today i was let go from the hospital. after kidney surgery, they put a stend in my kidney, Supposedly its supposed to help you urinate or something. well mines hurting extremely bad.
barely letting any urine flow. I really felt better with the kidney stone stuck Than i do with this stent. :/
Scott
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Dec 23, 2009 @ 9:21 pm
I am so happy to have found this site! I can totally relate to what everyone is going through. I had a stent inserted after laser lithotripsy (on 12/15/09) to remove a stone stuck in my ureter. Apparently, I am loaded with kidney stones in both kidneys but this one happened to get stuck in the ureter. My urologist informed my wife while I was in recovery that I could expect some blood in the urine and some discomfort for a few days b/c of the stent. The stent was to stay in for a week and he even said that it may &quot;slip out&quot; and that it would be ok if it did. What made things worse was that in the recovery room, the nurses would not let me go home until I urinated, which I could not go pee no matter how hard I tried. I mean, I was standing there begging my bladder to just give those nurses a drop. So, I had the pleasure of being catheterized for my trip home with instructions to see my urologist the next day for catheter removal. As soon as they placed the catheter in, two large blood clots plopped right in the bag. At this point, I was totally freaked out to say the least. My stent was with a string hanging down from my &quot;male anatomy&quot; which made urinating awkward and it just looked freaky which definitely had a psychological impact. Now I don't consider myself a wimp and can usually take pain, but the pain of this stent was excruciating. I was urinating every 10 minutes (with lots of blood). I was tired, cranky, and depressed. After a few days, the pain subsided a bit but still lots of blood and the only way I could make it bearable was to drink GALLONS of water. I was counting the days until I could get this thing out. I was even having nightmares about the urologist's office closing and me having to have this stent in longer. Finally, on Tuesday of the following week, it was time for removal. I was very anxious, but with the string, it was painless and quick. If you have a choice, ASK FOR THE STRING! Let me tell you, when the stent is removed, that is when the REAL fun starts. I am two days from stent removal and am still having bladder and kidney spasms that are so intense I am doubled over in pain. I find that if I take my Percocets just when I feel the pain coming on, I am ok. So, make sure you have plenty of pain meds for after stent removal. You'll need them. I am also passing what looks like fleshy clear looking blood clots which burn like fire when they come out. I know there are worse things to go through and that all of the pain is just part of the healing process. I will just be glad when it is over. I have vowed to make water my new best friend. I do not want more kidney stones. Everyone, you will get through it.
Liz
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Dec 24, 2009 @ 9:09 am
Ask questions, be prepared and don't plan the operation during the Christmas season! Unless, you don't want to complete your Xmas shopping, you don't care about spending time with family &amp; friends, and you rather be Scrooge during the holiday season.

I had a sound waves kidney stone removal operation with a sent inserted on 12/17/09. Bottom line, I had strong pain upon urination, and as is my nature, bit the lip and went with it; thereater, laid in bed most of time and minimized the Percoset intake . Initially, I requested a smaller dose of Percoset due to prior surgical experiences I don't do well with a strong doses. I was prescribed 325mg. The first dose I cut the tablet in half and pain was some what tolerable; thereafter, I decided to take the full dosage with limit on intake frequency. Three days later, I interchanged with Tylenol ( two 550mg tablets) and generally felt okay.
Today, is 7 days later and Christmas Eve, since the operation &amp; stent placement, feel much better, slight pain upon urination. Haven't taken a dose of Percoset in 24 hours just Tylenol.
I want to assure you that each of us have varied experieneces and yours will be different. Just be prepared, ask questions, take pain medications, rest alot, intake water and take time off.

I will see my doctor on 12/29 and will udpate.
Scott H
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Dec 29, 2009 @ 11:23 pm
I've had kidneystones for 21 years, lithotripsies, cystoscopies, and stents galore. I just had a stone removed and am the current proud owner of a stent, and it sucks.

Stents are painful. Readers of this website should not necessarily make a decision based solely on these comments. My first stent didn't cause much pain at all. The second one caused a ton of pain after they removed it - cramps and spasms for an entire day that was worse than the kidneystone itself! My current one - well, lots of blood, lots of flank pain during urination, kidney and bladder spasms, and I'm anticipating some pain after removal. But I have meds.

So yeah, you need pain medication during and after the stent. But every person's experience will be different. Heck, every one of my experiences have been different. If the doctors recommend a stent, I wouldn't turn it away. Just be aware that it's not a cakewalk and that you need adequate pain management.
jean marie
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Dec 30, 2009 @ 6:18 pm
i am having this done to me tomoorw. i have had bad pain for seven days .i am very afraid of this. do i go back to work with the stent in /i am on my feet 6 to 9 hours a day. how long is this necessary. i want to take back my life.
Pete
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Jan 3, 2010 @ 2:14 pm
Hi there

Know what you are all going through as I had a stent put in four weeks ago and it is due to be removed the week after next. This cannot come soon enough as I feel my life has changed for the worse as I have not really been able to do my normal day to day routine things.

I also like a few people did leave the hospital without any advise with what to expect. Contacted the Doctor on numerous occasions and have spent a fortune on prescriptions for things that did not make any difference to the pain and suffering that I have been going through over the past four weeks.

Tomorrow after the Christmas break I am finally going back to work and not looking forward to it as cannot cope with the pain, so lets see how it goes.
Sandra
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Jan 5, 2010 @ 7:19 pm
I had a kidney stone attack Nov. 28th (2009) and ended up on the emergency room. They said I had a stone about 7mm in size and no way I was going to pass it. They put a stent in me. I can't stand the pain from this stent. I had one treatment so far and go back Jan. 11th so they can take an exray and see what's up, but in the mean time this stent is driving me crazy. I have a hard time sitting,standing, and walking. I'm in the bathroom every few minutes and often have blood in my urin. It also hurts when I pass urin and I feel like someone is trying to pull my insides out after I finish. I get the sweats and feel weak for a few seconds. My doctor has me taking Lortab 5-500, but that doesn't seem to do much. I am going to call in the morning to see if there is something stronger that will ease this pain. I'm at work now and I feel like crying because this pain not only gets to me physically, but it's taking an emotional toll on me as well. If they can prescribe something stronger and it doesn't work, can I demand that they take this stent out of me? At this point I would rather put up with the pain of a stone for a few hours and puke my brains out than to have this 24/7.
Lynn
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Jan 8, 2010 @ 8:20 pm
I currently have in my 3rd stent in 4 months. On Dec 18 I had to have a ureter resected and then reimplanted after a stone obstructed the ureter and it was missed for a week. This stent is not as painful as the other, but I have been taking it easier, but have had to due to the vertical incision for the implant. Enablex has helped with the pain from the stent, but by the end of the day, vicodin is my pain med of choice. I will have this stent removed on Jan 25 and then have to make a plan for the remaining 2 stones that are &quot;calcified&quot; into the kidney itself and are not able to be removedd except by lithotripsy.
Each of the 3 stents that I have had were painful, but this one is not as bad as the other ones. The enablex has helped significantly.
Hope this helps someone out there as you have helped me.
God bless you all with better health this new year!
Mike
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Jan 10, 2010 @ 9:09 am
I came across this site looking for information on how uncomfortable the removal of my stent will be. I am a 39 year old male who had a 6mm stone lodged in my left ureter. It was removed with a laser and a stent was put in. The stent has a string and is uncomfortable but tolerable. I had the same experience after my surgery as Scott above. The nurse wanted me to pee, but for the life of me i could not. I had a full bladder from two IV bags but nothing would come out. The pain was HORRIBLE. I almost passed out twice. It was like having to pee REAL bad and having someone pinching your penis shut. They finally shoved a catheter in me which hurt like hell but relived the pain once it went in and drained my bladder. The real fun started after they sent me home. I was afraid to drink anything because I still had not urinated on my own. Well my bladder eventually filled up again and i was in the same position as I was at the hospital but without a catheter. The pain was terrible but a lot of blood and i guess a little urine was finally coming out. After enduring this torture for what seemed like an hour I finally pushed out the biggest blood clot I have ever seen. It looked like a piece of liver! It felt like I was passing jello or something like that. Then a strong stream of dark red urine followed. The clot was blocking my urethra completely. I would never wish this procedure on my worst enemy. The stone pain was nothing compared to this recovery process. I am drinking nothing but gallons of water for the rest of my life after this. I do NOT want to EVER go through this again. I am scheduled to have this damn stent removed tomorrow and am scared to death worrying about getting cramps and clotting again after it is removed. I just want to get on with my life. I am glad that I only have to have this thing in for a few days. I feel so bad for those of you who are forced to have them for weeks or months at a time. My stent doesn't cause much &quot;pain&quot; but I always feel like I have to urinate and it burns like crazy every time I go. The most frustrating part is feeling like I have to go really bad but only passing a small amount of urine. Well Im gonna say another prayer and load up on the vicodin for the stent removal tomorrow. Im gonna keep the vicodin close by in case I get those bad cramps that Scott talked about.
Mike
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Jan 11, 2010 @ 12:12 pm
Just got back from the stent removal. It was almost painless. I was very surprised. I had the stent with the string. I could have pulled it out myself. I am a little worried about cramping but happy to have the stent out and get on with my life. For those of you who have the stent with the string. Based on my experience, you shouldn't worry about it being painful. It is quick and just feels a little strange coming out. I still would not wish this on anyone. The recovery process was hell the first few days but the annoyance of the stent never went away. It was difficult to function when you constantly feel like you have to urinate. I had a difficult time trying to sleep more than anything. Now I feel completely normal again. I am praying that there are no complications. I never thought I would actually look forward to going to work but I can't wait.
Ann
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Jan 11, 2010 @ 1:13 pm
I am so happy I found this site. I was having urinary problems. Dr said it could be a cyst, a tumor or stones. I wasnt having any pain--some pressure after voiding that sometimes took my breathe away. Went in 12/21/09 for laser surgery. Was informed after surgery that I had a stone the size of a gumball!!! They lasered it--apparently on my left kidney I have 2 ureters and that is why I didnt have the agonizing pain from the start. I have 2 stents in and they will be removed on 1/29/10. I am having all the same complaints--pressure, flank pain, etc. Today is 1/11/09 and I just had to call for more meds--I had to call last week to ask for something for the spasms!!! He gave me samples of vesicare. Day 5 and I dont feel a lot better. Why the Heck dont they offer that from the start??? Last week I had to take 3 days off of work! I am back today and have already ran to the RR 4-5 times and they day isnt even over. I noticed a lot of people on here are teachers--which I am. Another teacher in my building went through the same thing 2 weeks prior to me. We both teach 5 classes in a row with no break. I have to leave my students in the hall as I dash (hahah i an barely walk the distance to the restroom) to use the rr. Would be interesting to see how many teachers or others who dont have access to the restroom are effected by this. I dont know how I would keep my job if this became &quot;normal&quot; for me. I cant wait for the stents to be removed and this is over. I feel for all of you and until you go through this no one has a clue what this does to you. Just because we &quot;look&quot; fine doesnt mean we are. Good luck to all!!!
Mike
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Jan 11, 2010 @ 8:20 pm
End of the day after my stent removal. No pain, no cramping, no bleeding and no complications. Back to work I go and on with my life. Very happy now.

Ann, I am happy to hear that you had a stone rather than a tumor. I had to stay home from work during my entire ordeal. I drive heavy machinery for a living and there is no way I could keep stopping to void every 5 minutes. I think the most frustrating thing about the stent is the false feeling that you have to go all the time. I couldn't even sleep because of it. I take my hat off to you for going to work with that thing in you. I wish you the best and hope for a quick recovery for you. God bless.
Kim
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Jan 12, 2010 @ 11:23 pm
Hi all. I had surgery on 12/15/09 for a UPJ Obstruction (Ureteropelvic Junction Obstruction). Yuck! Anyway, it was a hard recovery as I have just returned to work. I have the stent without a string. I have previously had one WITH a string and remember it being annoying, but painless as it was removed. This stent is supposedly the skinniest they come (i have &quot;narrow ureters&quot; as they say) and is VERY uncomfortable. I cry every night! The stent must stay in for 6 weeks in order for the operated ureter to heal correctly.

It took me weeks to find the right combination of medication. I take Vesicare in the morning along with Pyridium and Vicodin (3-4 times a day). The dr. said the pyridium &quot;doesn't do anything&quot; but for me has done WONDERS. I can function at work, although I go to pee a few times an hour, and i get bad flank pain during the day but i can use a heating pad and more pain meds to help. I suggest you get on your doctor about pain meds. I don't care if i have to call once a week...if i have to have this thing in until the end of January, i NEED something strong. I think its a joke that a LOT of these urologists believe that Tylenol would be enough for the pain. It is NOT!
Michelle
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Jan 13, 2010 @ 12:00 am
Hello all, can't believe there are so many experiences on here just like mine! I had my first stone (4mm) in my L kidney 2 days after Xmas 2007...went to hospital via ambulance (thought I was dying because of the pain). Got a shot and pills for pain. I passed that one after about 3 days.

This latest stone was in my R kidney, another 4mm, on Thanksgiving 2009. Got a shot of dilaudid/phenigren, oxycodone pills for pain, sent on my way. Three days before Xmas 2009, I go to hospital again, receive demorol (sp?) shot, hydroxodone for a 6mm stone in my R kidney. Go to uroloist, who says the 6mm isn't moving so they'll have to go in and get it. Oh yeah, and another one in my L kidney, unbeknownst to me, that was 7mm and still in the kidney. They could do the sonic blast thing on that one. Went in, had the surgery (was totally knocked out for it), got a stent in the R kidney. The stent hurt worse than the stone did! I spent a week barely moving, barely eating, in pain every time I urinated, and heavily doped up on Percocet and muscle relaxers. Missed 3 weeks of work overall due to these nasty little things (I work as a corrections officer and we can't go into work when on any type of narcotic). Got the stent out today, one week after surgery, and here go those spasms again! My bladder is spasming, as well as the R kidney. I just took 2 percocets and the pain is gradually subsiding. Gosh, I sure jope this isn't going to be a recurrent theme in my life. This pain is unbearable, which I'm sure all of you know. I have never in my 36 years on this planet felt such agony as I have in the last few weeks.
John F
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Jan 15, 2010 @ 7:07 am
What an amazing forum. So much info in here.

I have been diagnosed with a 9mm stone in my right ureter &quot;close to the VUJ&quot; whatever that is.

I am scheduled to have a stent inserted next Tuesday 19 Jan 2010 as the first stage in the stone removal. I understand that at a later date, they will go in with some instrument to break the stone up.

It sounds as though I am in for a rough ride. It looks like almost everyone has had considerable pain and discomfort.

I have had stones before. I have passed a couple of small ones with just short sharp pain and I have also had larger ones surgically removed. This is the first time that they have had to use a stent however.

I look forward to following this forum.
Charmaine
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Jan 15, 2010 @ 11:11 am
Hi,
I had my ureterscopy January 14 to remove large kidney stones in kidney/bladder/ureters. (This was detected during a hysterectomy last November.) I also had a stent inserted with the thread hanging out. I was very fearful of the pain involved by reading these posts. So far the pain is not totally botherson but then again I have been dealing with an UTI since the hysterectomy and meds not relieving the pain to my desire. (I have also previously endured wrist surgery, major spine surgery, a uterine ablation, a D&amp;C and naturally delivered 10lb babies) I have now been prescribed Cipro 1000mg ODx3, Percocet: 5mg/325mg 2 every 4 hours, and Detrol 5mg 3x/day. Peeing is constant as i am also constantly drinking water and cranberry juice. I am wearing a pad but there is no more blood...I use the pad as a presserary and apply pressure to vagaga when walking and periodically when sitting. I am also doing kegels. The most bothersome issue is that dang thread--I have accidently pulled it twice. I also cannot bend---that causes pain but it is manageable with a grunt and a loud groan...LOL...I am scheduled for a kidney xray next week and if all is well the urologist will pull the cord. I am hopeful the pain following will not be too bad...I feel some of my pain is actually the healing from the hysterexctomy which is not healing fully on the inside (granulous tissue growing over unhealed areas. I am now creating a new eating/exercise lifesyle to avoid kidney stones developing again and to lose weight (I also have a fatty enlarged liver. I am 43 yrs old at 205 lbs (I lost 10 lbs since November/hysterectomy) According to Real Age mybody thinks I am 52...eek...time to get fit and have fun!!!

Good luck to everyone going through this procedure!! The short term pain now will result in a great, active, painfree life! Be well!
Kasey
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Jan 16, 2010 @ 2:02 am
Wow I thought mine was bad but all I had was a 1mm stone. My doctor suggested I have surgery today in order to remove the stone so that I wouldn't have a miserable weekend. What a joke! They put a stent in during the surgery because the stone broke up when they tried to remove it. So much for my weekend, it's 2:00AM and I am still up. I have taken pain pills but nothing seems to ease that feeling that I have to pee every five seconds not too mention the burning sensation when I actually go. Any advice to alleviate this pain other than pain pills?
John F
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Jan 19, 2010 @ 7:07 am
They put the stent in today.

I didn't need a catheter apparently. I asked the doctor why and he said that it was just a feeling he had that it wouldn't be needed on this occasion. Because I was passing urine ok and all of my observations were good I could check out a few hours after the procedure and go home.

Yes it stings a fair bit when I urinate but I have no other uncomfortable symptoms and I can't detect that the stent is in there.

Subject to all being well he is going to go in there in a week and try to break up and retrieve the 9 mm stone which is located in my right ureter just above the bladder.

No pain tonight.
John F
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Jan 27, 2010 @ 3:15 pm
I've had a very comfortable week with the stent in. It's hard to believe that I've got a 9mm stone in my ureter just above the bladder.

I go in this morning to have the stone blasted and removed. The doctor said that there is a 90+% chance of success.
John F
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Jan 28, 2010 @ 9:21 pm
Back home from hospital today after having the 9mm stone blasted and removed yesterday.

There was slight discomfort with the catheter in the urethra but otherwise it was pain free.

He replaced the stent and I have that removed next week under a general anaesthetic. I mentioned to the doc today that I was pleased that it would be under a general anaesthetic and he was unaware that it is common practice elsewhere (as discussed in this thread) to remove it with a topical anaesthetic.

I have to say that this has been a very good overall experience in terms of pain.
pv356
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Feb 2, 2010 @ 8:20 pm
Kasey - lots and lots of water to drink. I've had my stent in for 3 weeks today. Everyday is a new adventure of what kind of pain will I have? At least 3 more weeks with stent. I have a whole in my ureter that we're praying will heal on it's own.
Jack
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Feb 3, 2010 @ 4:16 pm
I dont't know very much about the entire stint proceedure but I've been told that I may have to have one. I would like to know if it effects your sex life in any way and is it painful during ejaculation.
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Feb 3, 2010 @ 10:22 pm
I had a bilateral lithotripsy done a few weeks ago..mulitiple stones in both kidneys. I had a stent placed in both left and right ureter. Soon after I was released from the hospital I started experiencing severe cramping during urination, and frequent urination. It hurt so bad that I had to get in a warm bath after every bathroom use. I also had to push so hard to pee, I caused myself hemorhoids. I was on pain meds during this and I still cried daily b/c of the random sharp pains in my lower back and pelvic area, as well as bladder spasms regularly. I was miserable. I went to the ER even and was givin more pain meds. I finally got the stents out, which I was told would not hurt whatsoever. Wrong, It hurt me so much. I thought I was going to pass out. I was shaking, and could barely hold my legs still. After I had to run to the restroom and urinate which helped slow the pain. Unfortunately, about 30 minutes later a new bout of pain hit me, a very sharp pain in my pelvic area. This went on for a couple days, coming and going..and again I had to sit in a warm bath to even slightly help. This was my 2nd litho and was my first experience w/ stents. In my opinion the pain I suffered the 10 days after the surgery, 7 w/ stents in.. i suffered such severe pain, I would have preferred pass 1 kidney stone a day for 10 days then repeat that ordeal. I don't know if it was b/c I did both kidneys, or was super sensitive to the stents b/c of my spastic bladder or what, but it was awful.. I caused my dog to go in to a depression during my ordeal, lol. It was that bad. I know stents are a protective measure, and that breaking the stones up is supposed to make the process of passing less painful but I sure didn't feel that this procedure did anything but make me more miserable than I already was. Not fun. Oh and now, I am super exhausted and have been having a problem w/ sweating.. randomly throughout the day and excessively at night time. I spoke to my urologist about this and he was not concerned so I guess time will tell. Fun stuff. Thats my story.
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Feb 7, 2010 @ 1:13 pm
I had the stent out under a general anaesthetic last week. No Pain. The whole process of removing the 9 mm stone from my ureter just above my bladder has been very good.
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Feb 12, 2010 @ 12:12 pm
LOOK AT THIS WHAT IFOUND,VERY INTERESTING THIS IS WHAT I AM GOING THRU RIGHT NOW.
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Feb 12, 2010 @ 10:22 pm
Capsicum in the ureter or perianal gland works quite well to divert discomfort to other area.
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Feb 20, 2010 @ 4:04 am
I have had stents for over 2 years now and take opiates for the constant renal colic,the Doctor has finally put me on a bladder relaxant and the pain has eased 10 fold...In 2 weeks time i am having this stent out under a local its the first time having it done this way and am dreading it..They are going to see if i can manage with out it (i only have 1 kidney and narrowing of the ureter).I
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Feb 21, 2010 @ 9:21 pm
I have been dealing with my kidney stone for two plus months. First was diagnosed with a testical infection because my right testical was swollen and hurt. The Dr. gave me antibiotic and it did nothing. Called a different Dr. and told him my symptoms and he told me to go to the ER and get a scan done because I had a stone. I was diagnosed with a stone. Ureoligist wanted me to pass it on my own so I was just told to go home and drink plenty of fluids and come back in a couple of weeks. Finally went and had lithroscopy done and it didn't work stone doubled in size two weeks later. Just got out of hospital they put in stint and then they are going to laser it. After reading this it sounds like my pain will only get worse and I dont know that could be possible. This sucks!!!
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Feb 22, 2010 @ 2:14 pm
I am a 36 yr. old female in the teaching profession. I have heard kidney stones are sometimes referred to as the &quot;teacher's disease&quot; because we can't use the rr whenever we want. Last year I taught for more than 4 hours without a rr break. It was awful. This yr. is small improvement. I have passed 15 stones in 5 yrs. I had to have emergency sugery to remove a 5mm stone...said it was 4 before the surgery... and a stent put in. The stent has been very painful. Similar symptoms to the other posts...always feel the urgency to urinate and awful pain after...no relief. I too have trouble standing for too long. I get shakey and naseous...feel that &quot;tug&quot; effect others have mentioned. I am nervous bc I am scheduled for removel of stent on thurs. in the office on local anesthesia...also have to head out of town for work on fri. making a three hour drive. I have another big stone in the left. Dr. says lithrotrispy for that one which worries me too...I feel the pain is neverending and am running out of sick days.
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Feb 23, 2010 @ 9:09 am
I also had a stent placed in my left kidney to help drain the blockage. This was early to late January to early February 2010. I had the tube removed from the stent, and am still waiting to have the stent removed. I am also having pain in my lower back and abdomon, and it gets worse when I go to the bathroom. I also have bladder cancer, so I won't get this stent removed until my bladder removal, and that might not happen until the middle of April. I cannot wait! I am tired of the pain too.
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Feb 28, 2010 @ 1:01 am
Hi all, I'm 62, male, 84Kg, and very fit from cycling 200km a week for the last 3 years.
But Oct 09 I had cloudy pee and blood/protein breakdown products were found as well as a blocked left ureter and nephrosis of a kidney. There was no pain and I was easily riding faster than others in my cycling group. But later in 09 I was diagnosed with prostate cancer. All sorts of scans were done and my urologist suggested the ureter blockage be investigated in a procedure before the prostate was removed. My pee cleared up after a week and there was no pain despite the blockage. I had the investigative endoscopic surgery about 3 weeks ago where they found I had something they could not see squeezing my ureter shut. They took samples of the lumen to look for cancer but none was found. They also put ina stent after I had fasted in the hospital for 26 hours. After the stent insertion I needed 4 injections of morphine to ease the pain. I slept 4 hours and when I woke I was peeing blood and it was painful. I was released from hospital, ie, booted out, and told symptoms will ease. During the following 5 days of pain the symptomes did ease although I had an attack of even more painful backache. Bleeding stopped after 2 days. My accupuncturist gave me a treatemnt which eased my back ache, and the stent pain steadily eased.
A few days later after beginning to eat and poop again I felt so good I went out on my bike for 35km, and there was no problem. after 2 more days, 70km, and I thought all was fine. Then after another 2 days, another 80km but this time I began to pee blood after 50km so I rode the last 30km very slowly, feeling a bit alarmed. The bleeding stopped after a day's rest and pain during peeing was bad but bearable. Then after 2 more days I rode again and bleeding began after only 10km so I have given up riding for a week now completely. I no longer bleed, but have some discomfort with the stent and some pain when peeing.

My prostate op is due in 3 weeks, and I will be sending a report on pain&amp;symptoms to my doc. He said I would bleed a bit, and that I could ride a bike, and that the stent cannot remain for longer than 6 months. He also said that if the blockage is found to be due due to cancer spread then they would not do the prostate surgery and thatI would have to have radio therapy and hormone treatment instead. OK, so now there is not big pain anywhere, but the docs really don't know my total condition and it could well be the beginnning of the end for me. I thik at 62, longevity is an oxymoron, and what I have is shortevity, and how short that time is I have no clue, but cancer killed my father, sister, and nearly got the other sister so I've always thought my turn would come, and it did. My advice? make sure you insist on a prostate biopsy when your PSA goes to 4.5. By the time its 5.0, you will have been seen by the urologist and there's still time to catch the cancer before its spread. One has to allow for medical system delays. My PSA went from 4.7 to 7 in just 1 year and maybe I was just one year too slow to catch the cancer before it spread. The medical system here does not recommend you have a biopsy before PSA reaches 7.0.

I'm hoping the ureter problem is benign and fixable and not a spread of prostate cancer, but hope never affects medical outcomes which can be far worse than you hope for and accompanied with much pain during treatments. I had a prostate biopsy without aneasthetic and was in frightful pain as 9 samples were taken. Each was positive.

But at least I am fit and healthy (apart from cancer) and not overweight so when the docs cut me open again they don't have to work around piles of unwanted fat in my guts.

Regards to all. May the God of the Universe not torment you too much.
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Mar 4, 2010 @ 12:12 pm
I had a kidney stone which I went to the E.R. for. had litho and went home, cake.
The 2nd stone not so much. I started to have pain in March, I hate hospitals, so I endured til 4/20 then when I couldn't sleep in any position, I called an ambulance and went to the E.R. they told me I had 'a life-threatening' infection in my left kidney and a stone. Put me through 7 antibiotics before settling on one so caustic it blew 8 I.V.s before having to have a midline put in. Also got the stent in April.
Since the antibiotic was to go on for 4 months, I was placed in the nursing home from hell. After the treatments finished I waited a month before they would do surgery, then it was postponed, I had a drain in as well. I fired the original doc who wasn't even aware I had a catheter when I requested it be removed, and I had just seen him face to face.
He wanted to exchange the stent for a LARGER one.
I've had cancer (ovarian, in my teens), been in labor (16), both were extreme pain, and the stent was in another timezone of extreme, off the charts. I begged for pain killers. Soon, I had spasms so horrible I would roll in a ball and cry. The blood in my diapers went from red to black, but no one did anything.
In July I was given norcos, and dermal morphine. It worked for awhile, and I bled alot. Finally in August I was given a bladder relaxant for the spasms. I had to fight for it.
By September when the second doc finally scheduled me, I was making plans to make sure my friends and loved ones knew I loved them, certain this would end up killing me.
9/9/09 I had the surgery, litho. I had had the stent from 4/20 to 9/09
afterwards I was severely anemic. Finally able to ween myself-they were happy keeping me on the pain meds forever... off norcos, morphine and the bladder relaxant they kept giving me.
I left the nursing home on Oct 23rd. Since then I still have to wear diapers because I can't make it to the bathroom. My self-esteem has plummeted. I am only 46 years old.
I looked in hiring a lawyer, who laughed at me and said if I lost a kidney I'd have a good case, if I died it would be a great case.
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Mar 5, 2010 @ 3:03 am
Hi Beth, it seems like the God of the Universe isn't on your side. Health seems mainly due to pure luck and has nothing really to do with any supernatural being anyone can accurately describe IMHO.
From reading so many cases at this forum I think I have had it easy with the temporary uretic stent I have. But even at a concert last night with Nigel Kennedy playing violin I was in pain for some of the time. I think some stent pain comes from having a length of stiff pipe with flared ends sitting in a ureter which ordinarily can bend into any shape with body and internal organ movement which happens each day in our ordinary lives. If you bend down to tie shoe laces the ureters bend around and are pressured by other organs. So if you have a stent the end of the stent can press into soft linings of the ureter and cut them thus causing pain and bleeding. NOWHERE have I seen doctors mention this aspect of stenting; ie, the practical real world ability or disability of a patient to tolerate a stent.

I have cancer as well as ureter problems and the cause of my ureter bother could be a tumour on the ureter and I am not sure at all about what the surgeons can do to prolong my life and give me back some pain free health.

Regards to all, Patrick Turner.
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Mar 5, 2010 @ 6:18 pm
I am 42 I have had lithotripsy in 2005 where they broke up 9 stones. The basket stone removal and stent placement in 2002 to remove 1 stone. Constant pain sharp and cramping ended up with a severe infection and was put in the hospital on strong antibiotics for 3 days. Started developing stones 3 years after my last surgery but was able to pass them with no real problems. Feb. 6 I woke with the familiar pain of yet another stone. Same procedure pain meds lots of fluids. I ended up in ER on the 22 because things were no better. It was a 7 mm stone. When they did the CT there were 6 more in my left and 4 more in my right. I had surgery yesterday March 4 and they cleared the left kidney with litho, removed the large one with basket retrieval and also placed a stent in my left ureter. They are telling me I can go right back to work. There is no way NO SLEEP, CONSTANT CRAMPING, BLADDER SPASMS, RUNNING TO THE BATHROOM EVERY 5 MIN., BLOOD IN URINE, AND THE SHARP PAINS IN MY BACK. But they say I will be able to go back 100% With me trying to tell them I work in a warehouse unloading trucks. Are there any DOCTORS out there that will acutally listen when you try to talk to them? If you know of one let me know. I have passed 8 stones in the past 8 years and had 17 removed in the surgeries.
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Mar 5, 2010 @ 6:18 pm
I am 42 I have had lithotripsy in 2005 where they broke up 9 stones. The basket stone removal and stent placement in 2002 to remove 1 stone. Constant pain sharp and cramping ended up with a severe infection and was put in the hospital on strong antibiotics for 3 days. Started developing stones 3 years after my last surgery but was able to pass them with no real problems. Feb. 6 I woke with the familiar pain of yet another stone. Same procedure pain meds lots of fluids. I ended up in ER on the 22 because things were no better. It was a 7 mm stone. When they did the CT there were 6 more in my left and 4 more in my right. I had surgery yesterday March 4 and they cleared the left kidney with litho, removed the large one with basket retrieval and also placed a stent in my left ureter. They are telling me I can go right back to work. There is no way NO SLEEP, CONSTANT CRAMPING, BLADDER SPASMS, RUNNING TO THE BATHROOM EVERY 5 MIN., BLOOD IN URINE, AND THE SHARP PAINS IN MY BACK. But they say I will be able to go back 100% With me trying to tell them I work in a warehouse unloading trucks. Are there any DOCTORS out there that will acutally listen when you try to talk to them? If you know of one let me know. I have passed 8 stones in the past 8 years and had 17 removed in the surgeries.
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Mar 7, 2010 @ 2:14 pm
I am 17 weeks pregnant and I have kidney stones in my right kidney, and hydro forming in my left. They gave ma an iv and demerol in my iv assuring me that I would be able to pass them fine with enough fluid. This was on 3/3/10 i was at the er. I had a appointment with my obgyn on 3/5/10 who prescribed me percocet saying it would help with pain. It's 3/7/10 I'm in extreme pain I can't sit, sleep, and I'm afraid to take to much of the pain medication because of my baby. I went back and we are discussing the stent? does anyone have any advice to give me? Thank you
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Mar 8, 2010 @ 10:10 am
I had a stent put in my left kidney on 23rd feb because i have a narrow ureter and in the past have had kidney stones. I can honestly say that it has only caused me more pain!!! the first few days felt like i was peeing glass and the kidney spasms and the blood in my urine i had made me want to cry!! the pain wore off after 3 days then came back with full force soon after!! i went back to my doctor who sent me for blood and urine tests which came back borderline so they said take ibruprofen and it will settle down. i went back yet again and was given anti biotics because there was white blood cells and blood in my urine !! after 3 days the anti bioctics havent done anything and i have been referred back to the urologist, i hope they take this evil thing out!! give me kidney stones anyday!!
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Mar 10, 2010 @ 8:08 am
went back to the urologist yesterday after being refereed by my doctor, the urologist said its a shame the stent hasnt worked and that i should stop taking the anti biotics although i have symptoms of UTI!!!finally he said come back on 7th April to have the stent removed!! there is no way i can stay like this for another month, i am going to my doctor today to complain and ask for it to be removed pronto!!
Renee
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Mar 12, 2010 @ 8:08 am
I had an 8mm stone lodged in my right ureter back in November, they did a basket retrieval on that one and placed a stent. There were still 4 large stones in my right kidney and smaller ones in my left. The stent was extremely uncomfortable (and don't you love how the doctor says you should be able to return to normal working in a few days-yeah right- they've never had this procedure done to them). On top of everything else, I developed allergies to codeine and hallucinated on dilaudid - so it's just Tylenol and Aleve.
On 1/27 they did a lithotripsy with stent replacement. Once again &quot;you'll be fine in a 'few' days&quot;. Since I didn't do well the first time, I made sure I took at least 5 days off from work - including the procedure. Even then I worked one 8 hour shift and was in so much pain - I took the next 2 days off.
I just had the stent removed yesterday, it was not as bad as I thought it would be (men may have a worse time because the removal has to go over the prostate). I had some bloody urine for a while - LOTS of stones, but not a lot of pain (at least - so far). I hate doctors that have no compassion or bedside manner, but I don't have many options - there are only 2 groups in town and the other group if kinda far to travel. If I ever have to have another litho or basket removal - I may try the other group.
Good luck to you all. My best advice to everyone is DON'T BELIEVE THE DOCTOR about the amount of pain you will be in - get the good drugs (if you aren't allergic) and take additional time off work to recover. As always - everyone reacts to pain differently - but be kind to yourself and your kidneys - DRINK LOTS AND LOTS of WATER! Again - Good luck.
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Mar 12, 2010 @ 4:16 pm
Friday, March 12, 2010, and I underwent a ureteral stent procedure this morning at 8:15. The nurse came in and cleaned my groin area, squirted some novacain up my urethra (which was not uncomfortable at all), and gave me a healthy shot of demerol in the hip. After the demerol kicked in, the doctor came in and began the procedure. The only uncomfortable part was pushing the guide wire past the prostate. It felt kind of like being stuck with a hot needle. Other than that, it just felt like a little pressure. And, of course, I felt like I needed to urinate for most of the procedure. It took about 20 minutes to complete.
The aftermath has consisted of some bladder spasms that are diminishing with time. The doctor prescribed a bladder relaxer/pain killer for that. It is somewhat uncomfortable when I urinate. It stings pretty good, but that's because the urethra is still a bit irritated. And, of course, there is blood in the urine, which will diminish as well.
Overall, it was not as bad as I expected. I did not/have not experienced the horror stories you hear from some folks about this. But then it's only been a few hours. I'll have to see how I progress through the weekend.
To those of you anticipating this procedure, I say expect some mild discomfort during the procedure. And be ready for some uncomfortable urination afterwards. Everybody is different, but in my particular case, everything was very manageable. Just continue to drink a lot of water after the procedure to help flush the blood out, and to keep the ureter from becoming irritated due to lack of fluids. Don't worry, it's not as bad as many are saying. You'll get through it just fine.
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Mar 14, 2010 @ 11:23 pm
I had a fairly large stone removed by lithotripsy and then a stent placed between my kidney and my bladder. Painful! I have a very high pain threshold and the Vicodin they gave my barely touched it. Now I have been dealing with kidney stones and kidney infections since 96.
I had a stent placement last year as well but my thing is I don't remember being in this much pain or bleeding this long. I had my surgery on 3/5/10 it is now 3/14/ and the bleeding is still pretty substantial

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